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Message |
Hostess Rise
Board Administrator
Username: Rise
Post Number: 13601
Registered: 05-2003
| | Posted on Friday, July 09, 2010 - 08:11 am: | 
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I started to take Cellcept in 1996 after my transplant. I have been taking 1000 mg twice daily. At first, I had a loose stool and heard this was normal and after a period of time it would subside. Well that was not good enough for me. I called my transplant coordinator and told her that I was going to increase my enzymes that I take for my Cystic Fibrosis. Well it worked well for me. I do remember having to switch my enzymes to another brand at the time. I do not remember which one I was taking then.
After my second transplant, I realized the importance for me that without taking my probiotics, I would have trouble with taking Cellcept. I have tried to take less probiotics and when this would happen, my stomach would experience an unpleasant experience. Once I would go back onto my probiotics, taking Cellcept works fine.
A friend of mine who had a double lung transplant found when she had high amounts of fresh garlic her Cellcept numbers went very high. I am interested to hear about your experiences taking Cellcept.
Cystic Fibrosis- dx at 2yrs. -2nd double lung tx-05 Jackson Memorial Hospital, Miami, Florida
Debra Fertel MD- Med. Dir. Lung Transplant/Pulmonary Hypertension Programs
Si Pham MD, Professor of Surgery, Dir. of Thoracic Transplant & Artificial Heart Program
Anas Hadeh MD, Cleveland Clinic, Weston, Florida
CF consultant- Critical Care and Sleep Medicine
Sharing Knowledge is an Invaluable Experience
Transplant Friends & Chat
Questions- Contact }Hostess Rise' |
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Jack
Member
Username: Johnhollenbach56
Post Number: 140
Registered: 12-2009
| | Posted on Friday, July 09, 2010 - 08:50 am: |
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All in all I've had pretty good experience with my Cellcept use, though I am only taking a fraction of your dose (250 mg. twice a day), there is still an occasional 'loose stool', but hey I can live with that. Never had the opportunity to see any variance due to differing foods - though I do use a lot of garlic when I cook, which is often. How would one check that?
Jack Hollenbach
jack_hollenbach@hotmail.com
Received double lung transplant August 2, 2007 for COPD at UCSD Thornton Hospital, San Diego, CA
Live each day to your fullest, for it is a gift to be treasured |
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Hostess Rise
Board Administrator
Username: Rise
Post Number: 13636
Registered: 05-2003
| | Posted on Monday, July 12, 2010 - 08:00 am: |
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Hi Folks,
Check out Transplant Friends. There is a group about Cellcept on
http://transplantfriends.com/group/whosoncellcept
You need to join in order to post to this group.
Cystic Fibrosis- dx at 2yrs. -2nd double lung tx-05
Debra Fertel MD- Med. Dir. Lung Transplant/Pulmonary Hypertension Programs
Jackson Memorial Hospital
Si Pham MD, Professor of Surgery, Dir. of Thoracic Transplant & Artificial Heart Program-Miam Transplant Institute
Anas Hadeh MD, Cleveland Clinic, Weston, Florida
CF consultant- Critical Care and Sleep Medicine
Sharing Knowledge is an Invaluable Experience
Transplant Friends & Chat
Questions- Contact Hostess Rise' |
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Karen R.
Forum Leader
Username: Relivkaren
Post Number: 4630
Registered: 07-2007
| | Posted on Tuesday, July 13, 2010 - 09:59 pm: |
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I was taken off Cellcept 3 months post transplant due to a low WBC. I have never been put back on it.
God Bless!
Karen
Dx: BOOP - May 2006. Rediagnosed with Bronchiolitis Obliterans Nov. 2006
Double lung transplant on Dec. 1st, 2009
Cleveland Clinic
Ohio, USA
Be kinder than necessary because everyone you meet is fighting some kind of battle. |
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Joe Berry
Forum Leader
Username: Joe910
Post Number: 202
Registered: 08-2008
| | Posted on Thursday, July 15, 2010 - 10:29 pm: |
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I have been on Cellcept since transplant in 2007. It helps with my transplant and with my Ulcerative Colitis. For me it has my UC completely under control and has virtually eliminated my "loose stools".
Joe Berry, Peoria, IL USA
Forum Leader
Diagnosed with PSC and UC in 1990
Liver Transplant 10-17-2007
Northwestern Memorial, Chicago, IL |
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tigergirl
Member
Username: Gcathy
Post Number: 1
Registered: 01-2011
| | Posted on Saturday, January 08, 2011 - 02:40 pm: |
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I take the generic brand of cellcept, prednisone, and prograf. I was hospitalized recently with a virus and they took me totally off my cellcept while there and for 2 weeks afterwards. When I had my lab work 2 weeks later, my creatinine was the best if had ever been. However, they put me back on it at my next doctor's appt. I was wondering if any of you just take prograf and prednisone and don't take cellcept at all. Thanks. |
Hostess Rise'
Board Administrator
Username: Rise
Post Number: 15425
Registered: 05-2003
| | Posted on Saturday, January 08, 2011 - 03:07 pm: |
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I also have been taking Cellcept with no trouble since 96
We all react differently to drugs.
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Hostess Rise'
Board Administrator
Username: Rise
Post Number: 15426
Registered: 05-2003
| | Posted on Saturday, January 08, 2011 - 03:08 pm: |
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Welcome Tigergirl
Glad that you found us. You can post your questions in other forums to hopefully find others to respond to your specific questions.
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