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Hostess Rise
Board Administrator
Username: Rise

Post Number: 13885
Registered: 05-2003
Posted on Monday, August 02, 2010 - 07:46 am:   Edit Post Delete Post Print Post

Just placing this title up in case you would like to share your experiences with us.
Cystic Fibrosis- dx at 2yrs. -2nd double lung tx-05
Debra Fertel MD- Med. Dir. Lung Transplant/Pulmonary Hypertension Programs
Jackson Memorial Hospital

Si Pham MD, Professor of Surgery, Dir. of Thoracic Transplant & Artificial Heart Program-Miam Transplant Institute

Anas Hadeh MD, Cleveland Clinic, Weston, Florida
CF consultant- Critical Care and Sleep Medicine

Sharing Knowledge is an Invaluable Experience
Transplant Friends & Chat
Questions- Contact Hostess Rise'
Meagan
Forum Leader
Username: Newheart14

Post Number: 1230
Registered: 01-2009
Posted on Monday, August 02, 2010 - 09:01 am:   Edit Post Delete Post Print Post

My experience with blood pressure medications is that the one I was on made my potassium level dangerously high and I ended up in the hospital twice in the last 6 months. I was on ramipril (altace) which they say increases your potassium. I took ramipril for a long time prior to my transplant and ironically I had to take potassium pills because I was also on lasix (diuretics). So I can`t help but wonder if the anti-rejection drugs has played a part in my potassium levels being high.

They took me off ramipril and we bought a blood pressure monitor so I could keep on eye on my BP. At my last clinic it was high and they told me to keep on eye on it as they may put me back on a different medication. I said it was probably high because I was at clinic. It always gets high when I go in for clinic, biopsies, and other tests.

High blood pressure is the "silent killer", so I advise everyone to please check your blood pressure regularly. A blood pressure monitor only costs around $100.00 and could save your life. High potassium is also very dangerous so I also advise everyone to have your levels checked when you have your labs done.
Forum Leader
First Combined Heart-Liver Transplant
Performed at Toronto General Hospital, Toronto, Canada
February 14, 2008
Diagnosed with idiopathic dilated cardiomyopathy 1991 and eventual CHF

Most of the important things in the world have been accomplished by people who have kept trying when there seemed to be no hope at all - Dale Carnegie
Jack
Forum Leader
Username: Johnhollenbach56

Post Number: 204
Registered: 12-2009
Posted on Monday, August 02, 2010 - 09:23 am:   Edit Post Delete Post Print Post

I have not had a real problem with blood pressure, though the doctors do have me on Lasix. But checking my BP is part of my daily routine, and slight correction Meagan, if you check on Amazon you can get a nice monitor & cuff for ~$50, not a bad investment if I do say so
Jack Hollenbach
jack_hollenbach@hotmail.com
Received double lung transplant August 2, 2007 for COPD at UCSD Thornton Hospital, San Diego, CA

Live each day to your fullest, for it is a gift to be treasured
Meagan
Forum Leader
Username: Newheart14

Post Number: 1231
Registered: 01-2009
Posted on Monday, August 02, 2010 - 09:47 am:   Edit Post Delete Post Print Post

Jack,

I wish I had checked that out before I bought mine at Walmart. Maybe I can still return it. But then again, shipping may be high to Canada. Come to think of it, they charge us 15% tax on our purchases up here so I might have broken out even at Amazon.

Everyone, buy your BP monitor at Amazon. Jack said it's cheaper than Walmart ... Canadian Walmarts anyway. :-)
Forum Leader
First Combined Heart-Liver Transplant
Performed at Toronto General Hospital, Toronto, Canada
February 14, 2008
Diagnosed with idiopathic dilated cardiomyopathy 1991 and eventual CHF

Most of the important things in the world have been accomplished by people who have kept trying when there seemed to be no hope at all - Dale Carnegie
Hostess Rise
Board Administrator
Username: Rise

Post Number: 13890
Registered: 05-2003
Posted on Monday, August 02, 2010 - 01:33 pm:   Edit Post Delete Post Print Post

Before my FIRST tx, a pulmo doctor gave me Procardia. All I rememberr was after taking it, my body turned bright red.

When I went for my Evaluation in Chicago, my transplant doctors told me I should never have been prescribed that drug. I had core pulmonale (end stage cf) and perhaps this doctor thought it would help.

I have learned since to take any advice from outside transplant doctors to your Transplant Doctors.

I no longer see that doctor who gave me procardia. I was asking myself the other day, perhaps I should stop by and say hello. hmmmm, there were too many issues that bothered me. He was a great doctor overall but it is time for the specialist these days. I have moved on......
Cystic Fibrosis- dx at 2yrs. -2nd double lung tx-05
Debra Fertel MD- Med. Dir. Lung Transplant/Pulmonary Hypertension Programs
Jackson Memorial Hospital

Si Pham MD, Professor of Surgery, Dir. of Thoracic Transplant & Artificial Heart Program-Miam Transplant Institute

Anas Hadeh MD, Cleveland Clinic, Weston, Florida
CF consultant- Critical Care and Sleep Medicine

Sharing Knowledge is an Invaluable Experience
Transplant Friends & Chat
Questions- Contact Hostess Rise'
Kbloomer
Member
Username: Kbloomer

Post Number: 64
Registered: 12-2009
Posted on Monday, August 02, 2010 - 08:38 pm:   Edit Post Delete Post Print Post

I have been on Procardia XL90 for about 14 years. Almost 2 years post transplant. I don't have high blood pressure although it is probably helping keep the pressure low.

Procardia, calcium channel blockers in general, can help with raynauds as well as some PH patients.

My transplant docs put me on atenolol post transplant. It is terrible for you if you have raynauds. As soon as they let me get off of it we changed back to Procardia.

The atenolol had some other beneficial effects on the heart that they felt I needed for a while post transplant.
Bilateral Lung Transplant 11-12-08
Brigham and Womens Hospital, Boston, MA

Scleroderma, Pulmonary Fibrosis, Pulmonary Hypertension
CiscoKidney07
Forum Leader
Username: Gregg

Post Number: 3824
Registered: 03-2008
Posted on Saturday, August 21, 2010 - 09:28 pm:   Edit Post Delete Post Print Post

I have been on Metropolol for about 5 years. 100 mg 2 X daily along with Lisinipril 20 mg while on dialysis. After tx, lost the Lisinipril and went to 50mg 2 X daily. I have had two reductions since--now 12.5 mg 2 X daily. Exercise has been the key to being able to get rid of some of this stuff.
There are not too many things in life worth working my butt off for, but my health is one of them

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