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TransplantBuddies.org Forums » Medications - Dental - Skin » Do the meds make you feel sick or irritable in the beginning? « Previous Next »
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Marissa
Member
Username: Kaidensmom

Post Number: 5
Registered: 07-2010
Posted on Sunday, August 29, 2010 - 12:55 am:   Edit Post Delete Post Print Post

My 11 month old had a heart transplant on 04/15/2010 and since then he seems to have more bad days then good. He is on 12 meds including
Prograf,
Cell Cept,
Prednisolone
Amlodipine
Keppra
Acyclovir, Bactrim
Lasix
Difflucan, Nystatin
Nexium
Poly Vi Sol
and since he is not fully talking I am not able to ask him how hes feeling or what exactly is bothering him. He has many days where he is extremely irritable, crying most of the day and can has terrible mood swings. Being his mother I can tell that he's just not feeling well but I wish he was able to explain to me whats going on and which meds make him feel the yuckiest. He never acted so irritable and had a very happy disposition prior to transplant.

Can someone please give me some insight and let me know what I can do to make him feel better. I hate seeing my baby this way. I know that the Prednisolone can cause mood swings but i'm sure thats not the only med making him feel so awful;

Kaiden's Mom
Kaiden (9months)
Born with a Congenital Heart Defect
Called Hypoplastic Left Heart Syndrome
Had three open heart surgeries prior to transplant
Heart Recipient 4/15/10
CiscoKidney07
Forum Leader
Username: Gregg

Post Number: 3855
Registered: 03-2008
Posted on Sunday, August 29, 2010 - 08:00 am:   Edit Post Delete Post Print Post

Marissa, maybe you could approach the tx doctor with the same question. Since the only drug I was on that is in his regimen, I will tell you what I know about prograf. It can cause headaches, and I have had them from time to time. I would not think it would cause mood swings.
There are not too many things in life worth working my butt off for, but my health is one of them
Hostess Rise
Board Administrator
Username: Rise

Post Number: 14307
Registered: 05-2003
Posted on Sunday, August 29, 2010 - 09:07 am:   Edit Post Delete Post Print Post

Marissa,

Can you give all his meds one hour a part and observe his reactions? If you can do this for a few days in a row and write down what you observe, you might have a clue.

How does he respond to movement after each dose?
Have you ever thought about calling a pharmacist for advice regarding how to give him all his meds? Hopefully the transplant coordinator will tell you how to give him the meds.
Cystic Fibrosis- dx at 2yrs. -2nd double lung tx-05
Debra Fertel MD- Si Pham MD, Professor of Surgery---Jackson Memorial Hospital
Anas Hadeh MD, Cleveland Clinic CF care

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cindy
Member
Username: Cindy

Post Number: 253
Registered: 09-2008
Posted on Sunday, August 29, 2010 - 11:01 pm:   Edit Post Delete Post Print Post

Marissa,

how much prograf is Kaiden on? the reason I ask is with me prograf made me very,very jittery almost to the point it was unbearable at times. But eventually the doctor lowered my dose and it got a little better. I still have them , but they are tolerable now. I wish I had advice as what you could do for kaiden......maybe a warm bath and a massage. Do ask you transplant team I'm sure they have great suggestions to offer you. take care and hugs to baby Kaiden:-)


Cindy
Cindy

Double Lung Transplant on Feb 9, 2010

at UCSD/Thornton Hospital, San Diego, Ca.

Albuquerque, New Mexico..USA

www.caringbridge.org/visit/cindywalters

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