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Hostess Rise'
Board Administrator
Username: Rise

Post Number: 15809
Registered: 05-2003
Posted on Friday, February 25, 2011 - 09:44 am:   Edit Post Delete Post Print Post

At last, I finally remembered to blog about this very important topic

Magnesium. Oh how I love Magnesium. Without magnesium, I feel nervous, jittery and sometimes have muscle cramps if my magnesium levels go to low.

I am now a firm believer that not all magnesium supplements are created equal.


Now that I am a transplant patient, I have learned there are different magnesium supplements that I can take.

I have tried magnesium oxide, magnesium citrate and magnesium lactate.

For many, too much magnesium citrate will keep you on the potty if you take too much.

Through trial and error I have finally found my true love with Magnesium Glycinate.

Has anyone heard of this supplemental magnesium before? It seems to absorb into my system and if I take an extra dose by mistake, I am not sitting on the potty. :-)
Cystic Fibrosis- dx at 2yrs. -2nd double lung tx-05

Debra Fertel MD- Jackson Memorial Hospital Si Pham MD, Professor of Surgery

Anas Hadeh MD, Cleveland Clinic, Weston, Florida CF consultant- Critical Care and Sleep Medicine

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Debi Bair
Member
Username: Gingerbair

Post Number: 3
Registered: 02-2011
Posted on Friday, February 25, 2011 - 10:13 am:   Edit Post Delete Post Print Post

Have been taking mag oxide for over 20 yrs due to a bowel surgery. Will have all the symptoms you've mentioned if I don't take it. Have also found taking multi vits help decrease the 'potty time;. The iron in them slows things up a bit while you're taking extra antibiotics.
Hostess Meagan
Forum Leader
Username: Newheart14

Post Number: 1749
Registered: 01-2009
Posted on Friday, February 25, 2011 - 10:13 am:   Edit Post Delete Post Print Post

Rise',

Magnesium is also good for your heart and I have been taking magnesium, calcium and vitamin D since transplant. However, I need to caution everyone that calcium and magnesium can affect the absorption of other medications, e.g. thyroid medication, and certain antibiotics. There may be other medications as well. It is best to check with your pharmacy to see when you should take your other meds when taking these minerals and vitamins.
Forum Leader
Heart-Liver Transplant - February 14, 2008
Toronto General Hospital, Toronto, Canada
Idiopathic dilated cardiomyopathy 1991 and CHF

- Most of the important things in the world have been accomplished by people who have kept trying when there seemed to be no hope at all - Dale Carnegie
- Bumps in the road can sometimes be mountains, so I have learned to climb mountains - Meagan

Meagan's Blog
Jack R
Forum Leader
Username: Jack_r

Post Number: 352
Registered: 08-2010
Posted on Friday, February 25, 2011 - 11:29 am:   Edit Post Delete Post Print Post

Rise'
Since my transplant I have taken 800 mg 2 x's p/d of Mag. Oxide and, along with Meagan, also calcium with vit. D. This seems fairly standard, for JHMI patients, with Heart Transplants.
Magnesium is a key electrolyte. Pre-transplant with my Cardiomyopathy, thus a greatly enlarged Heart, I had issues with the ability to keep my electrolytes in balance. When out of balance it would cause my defibulator to kick (and I mean kick) in.
No side effects at all.
I get my Mag. Oxide at Walmart for $40 per 90 day supply.
Cardiac history going back to 1993. Heart Transplant received in Oct. 2004. Interesting first year and have been very physically active ever since. I currently am pro-active with the SE PA. Gift of Life and a member of Johns Hopkins patient administered Heart Transplant Foundation.

Exercise - look around you and don't tell me you can't -Blog
Hostess Rise'
Board Administrator
Username: Rise

Post Number: 15810
Registered: 05-2003
Posted on Friday, February 25, 2011 - 04:20 pm:   Edit Post Delete Post Print Post

Meagan- great point!
You know I do take my calcium. magnesium and vitamin d hours away from my medications and other vitamins.

Max oxide does nothing for me. It is amazing how some supplements work great for some and not for others.
Cystic Fibrosis- dx at 2yrs. -2nd double lung tx-05

Debra Fertel MD- Jackson Memorial Hospital Si Pham MD, Professor of Surgery

Anas Hadeh MD, Cleveland Clinic, Weston, Florida CF consultant- Critical Care and Sleep Medicine

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Hostess Meagan
Forum Leader
Username: Newheart14

Post Number: 1752
Registered: 01-2009
Posted on Friday, February 25, 2011 - 07:04 pm:   Edit Post Delete Post Print Post

Rise',

Can you name again the various magnesium supplements please? I take magnesium oxide and have a hard time sometimes swallowing it and have actually brought it up a couple of times. I would like to ask my center if I could switch to one that is more easy to swallow.

Thanks :-)
Forum Leader
Heart-Liver Transplant - February 14, 2008
Toronto General Hospital, Toronto, Canada
Idiopathic dilated cardiomyopathy 1991 and CHF

- Most of the important things in the world have been accomplished by people who have kept trying when there seemed to be no hope at all - Dale Carnegie
- Bumps in the road can sometimes be mountains, so I have learned to climb mountains - Meagan

Meagan's Blog
Hostess Rise'
Board Administrator
Username: Rise

Post Number: 15820
Registered: 05-2003
Posted on Saturday, February 26, 2011 - 04:15 pm:   Edit Post Delete Post Print Post

Meagan

look at this webpage from Ehow.com

http://www.ehow.com/about_5130706_types-magnesium-supplements.html


The article does not mention Magnesium Glycinate.

--------------------------------------------------
Another webpage about Magnesium
http://ods.od.nih.gov/factsheets/magnesium/


This is the product that I am going to try now as I will be receiving this in a few days.
http://www.swansonvitamins.com/KL468/ItemDetail?n=0

I currently take a magnesium glycinate but I believe I will say a bit more money with this product.
CF- dx at 2yrs. 2nd double lung tx-05

Debra Fertel MD- Jackson Memorial Hospital Si Pham MD, Professor of Surgery

Anas Hadeh MD, Cleveland Clinic, Weston, Florida Cystic Fibrosis consultant- Critical Care and Sleep Medicine

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Hostess Meagan
Forum Leader
Username: Newheart14

Post Number: 1757
Registered: 01-2009
Posted on Saturday, February 26, 2011 - 04:56 pm:   Edit Post Delete Post Print Post

Thanks Rise'. I will ask them if I can switch to the one you take. The others seem to cause too many bathroom issues. Actually, I may need the ones that cause bathroom issues now that I am taking iron pills ... lol.
Forum Leader
Heart-Liver Transplant - February 14, 2008
Toronto General Hospital, Toronto, Canada
Idiopathic dilated cardiomyopathy 1991 and CHF

- Most of the important things in the world have been accomplished by people who have kept trying when there seemed to be no hope at all - Dale Carnegie
- Bumps in the road can sometimes be mountains, so I have learned to climb mountains - Meagan

Meagan's Blog
Hostess Rise'
Board Administrator
Username: Rise

Post Number: 15864
Registered: 05-2003
Posted on Wednesday, March 09, 2011 - 02:14 pm:   Edit Post Delete Post Print Post

UPDATE:

I am no longer taking magnesium glycinate. I believe I had a bad interaction with this type of magnesium. My heart started to race one evening and I thought it was because my body was once again low in magnesium so I took more magnesium glycinate. Finally, after having some carbs in the middle of the night, I fell asleep.

When I awoke, I took some more magnesium and calcium and about one hour later, my heart started to race again. I first thought was, I must be going through my changes (mid life) and then a friend said to me, what are you taking new and I then tested myself through muscle testing to my new drug and then to my magnesium glycinate. Sure enough my body tested very weak via muscle testing to the magnesium glycinate.

Fortunately, I learned how to clear allergens from my body through energy medicine. I was able to clear the effects of the magnesium glycinate and after a few minutes, my heart rate returned to normal. I then fell into a deep sleep.

I switched back to a lower dose of magnesium citrate and calcium lactate that also contains some magnesium.

Thankfully all is well. I am now testing myself every time I take my minerals and supplements. Are bodies change from time to time. What a strange and scary experience that was.

Energy medicine is a miracle. I have been able to clear bad headaches from Prograf. Thankfully this does not happen all that often. The lesson that I learned is to test more often as this is a simple thing for me to do.

If I did not respond well after clearing the allergen, I would have called my doctor.

I do not read many books but Energy Medicine by Donna Eden is a life saver.
CF- dx at 2yrs. 2nd double lung tx-05

Debra Fertel MD- Jackson Memorial Hospital Si Pham MD, Professor of Surgery

Anas Hadeh MD, Cleveland Clinic, Weston, Florida Cystic Fibrosis consultant- Critical Care and Sleep Medicine

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Hostess Meagan
Forum Leader
Username: Newheart14

Post Number: 1794
Registered: 01-2009
Posted on Wednesday, March 09, 2011 - 04:07 pm:   Edit Post Delete Post Print Post

Rise',

Glad you're OK. I am definitely not going to switch the type of magnesium I am on. I will just choke down the chalky magnesium oxide I have been taking since transplant. I don't know what energy medicine is, but I'm glad it worked for you. I wonder if it can cure colds.

Hugs,
Meagan
Forum Leader
Heart-Liver Transplant - February 14, 2008
Toronto General Hospital, Toronto, Canada
Idiopathic dilated cardiomyopathy 1991 and CHF

- Most of the important things in the world have been accomplished by people who have kept trying when there seemed to be no hope at all - Dale Carnegie
- Bumps in the road can sometimes be mountains, so I have learned to climb mountains - Meagan

Meagan's Blog
Jo
Member
Username: Oxygirl

Post Number: 242
Registered: 05-2009
Posted on Saturday, April 02, 2011 - 06:18 pm:   Edit Post Delete Post Print Post

I am only 6 and a half months out, but I have been on mag oxide, 4 pills a day and Calcium/Vit D 4 pills a day since transplant. I haven't noticed side effects if I'm late with a dosage or whatever, but there are so many side effects of everything we take, I just lump them all together! Meagan...my mag oxide pills are big and difficult to swallow, so I break them in two. It helps a little, at least psychologically!
Dx with BOOP/IPF Nov 2004
Listed Dbl Lung Tx Jan 13 2010
Double Lung tx Sept. 17, 2010
Emory Hospital Atlanta
Hostess Rise'
Board Administrator
Username: Rise

Post Number: 15913
Registered: 05-2003
Posted on Tuesday, April 05, 2011 - 12:57 pm:   Edit Post Delete Post Print Post

Hi Jo and Meagan

I am now only taking 300 mg of Mag citrate. What a miracle this is for me and a big savings too LOL

It turns out I was not taking in enough salt in my diet. Those of us with CF (cystic fibrosis) need to take in more salt in their diets.

All of these years I was taking so much magnesium when I did not need it and all I needed was to balance out my system with electrolytes.

All I can say to this is WOW we live and learn.

I use this product and love it for those CF patients out there.
http://www.amazon.com/Redmond-Gourmet-Natural-4-75-Ounce-Shakers/dp/B000EOMUAU
CF- dx at 2yrs. 2nd double lung tx-05

Debra Fertel MD- Jackson Memorial Hospital Si Pham MD, Professor of Surgery

Anas Hadeh MD, Cleveland Clinic, Weston, Florida Cystic Fibrosis consultant- Critical Care and Sleep Medicine

Join Facebook
Hostess Rise's blog
My Photos on Transplant Friends
Questions- Hostess Rise

Hostess Meagan
Forum Leader
Username: Newheart14

Post Number: 1832
Registered: 01-2009
Posted on Tuesday, April 05, 2011 - 01:21 pm:   Edit Post Delete Post Print Post

Hi Rise',

Wow, we do live and learn. I had no idea people with CF needed more salt in their diets. People like myself, and other heart patients, kidney patients, etc., need to watch our salt intake. I'm flabbergasted. I am learning more and more about CF.

I am so glad you have been able to sort out your magnesium problem. Magnesium is amazing for everyone. For me, it helps my heart, amongst other things. I had to cut out one of my doses as I found out it affects the absorption of my thyroid medication which I have to take in the morning. As for the bathroom issues they may cause, that problem has stopped since I have started to take iron pills (iron pills tend to constipate ... lol)

Hugs, Meagan
Forum Leader
Heart-Liver Transplant - February 14, 2008
Toronto General Hospital, Toronto, Canada
Idiopathic dilated cardiomyopathy 1991 and CHF

- Most of the important things in the world have been accomplished by people who have kept trying when there seemed to be no hope at all - Dale Carnegie
- Bumps in the road can sometimes be mountains, so I have learned to climb mountains - Meagan

Meagan's Blog
Hostess Meagan
Forum Leader
Username: Newheart14

Post Number: 1833
Registered: 01-2009
Posted on Tuesday, April 05, 2011 - 01:31 pm:   Edit Post Delete Post Print Post

PS - Rise',

How do you like the taste of the sea salt? Although I do watch my salt intake, I have tried sea salt and don't like it and I'm thinking of trying the kosher salt. Regular table salt is really not good for people to ingest.
Forum Leader
Heart-Liver Transplant - February 14, 2008
Toronto General Hospital, Toronto, Canada
Idiopathic dilated cardiomyopathy 1991 and CHF

- Most of the important things in the world have been accomplished by people who have kept trying when there seemed to be no hope at all - Dale Carnegie
- Bumps in the road can sometimes be mountains, so I have learned to climb mountains - Meagan

Meagan's Blog
Hostess Rise'
Board Administrator
Username: Rise

Post Number: 15917
Registered: 05-2003
Posted on Tuesday, April 05, 2011 - 01:43 pm:   Edit Post Delete Post Print Post

Hi Meagan

I love the sea salt. Maybe this brand is better? I sprinkle this salt on my foods.
CF- dx at 2yrs. 2nd double lung tx-05

Debra Fertel MD- Jackson Memorial Hospital Si Pham MD, Professor of Surgery

Anas Hadeh MD, Cleveland Clinic, Weston, Florida Cystic Fibrosis consultant- Critical Care and Sleep Medicine

Join Facebook
Hostess Rise's blog
My Photos on Transplant Friends
Questions- Hostess Rise

Jo
Member
Username: Oxygirl

Post Number: 246
Registered: 05-2009
Posted on Wednesday, April 06, 2011 - 10:01 pm:   Edit Post Delete Post Print Post

Meagan...I like to use the kosher salt. But, really, I like any salt unfortunately. And, as for the iron pills, I can give you a huge ICK on those, b/c I've been on that since tx and it definitely causes problems!!!
Dx with BOOP/IPF Nov 2004
Listed Dbl Lung Tx Jan 13 2010
Double Lung tx Sept. 17, 2010
Emory Hospital Atlanta
Hostess Meagan
Forum Leader
Username: Newheart14

Post Number: 1838
Registered: 01-2009
Posted on Thursday, April 07, 2011 - 09:48 am:   Edit Post Delete Post Print Post

Hi Jo Jo,

I found the sea salt tasted too much like the sea and I'm going to try the kosher when I remember to put it on our grocery list. We do watch our salt intake and use low sodium products, but some things do need a touch of salt.

As for the iron, are you taking the tablets or the capsules? I take the capsules rather than the pills which don't upset my stomach. I also take them with food, even though it is absorbed better if you take them an hour before you eat. I had to find a time of day when I wasn't taking my other meds as iron can interfere with their absorption, so I have no choice other than to take them with a late lunch. I have heard that iron is better absorbed taken with vitamin C. It has been difficult finding a time of day to take my iron as calcium also interferes with the iron absorption. There doesn't seem to be enough hours in the day in which we can spread our meds out so they don't interfere with each other.

I eat a lot of fiber so the other issues aren't so bad. I am also eating a lot of greens, spinach etc. which is ironic (pardon the pun) since I had to stay away from these when I had high potassium. A stool softener such as docusate sodium (colace) taken along with your iron may help, but don't take them too often as you don't want your body to become reliant on them.

The capsules are a little more expensive, so if you have to take them for a long time, I think you can get a good price online, but you have to buy a lot.

Hugs, Meagan
Forum Leader
Heart-Liver Transplant - February 14, 2008
Toronto General Hospital, Toronto, Canada
Idiopathic dilated cardiomyopathy 1991 and CHF

- Most of the important things in the world have been accomplished by people who have kept trying when there seemed to be no hope at all - Dale Carnegie
- Bumps in the road can sometimes be mountains, so I have learned to climb mountains - Meagan

Meagan's Blog

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