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cruizin
Member
Username: Cruizin

Post Number: 64
Registered: 09-2010
Posted on Friday, March 04, 2011 - 01:31 pm:   Edit Post Delete Post Print Post

Sorry to be blunt ...

Has anyone found a way to reduce this side effect of MMF?

Are most people on 1g twice daily?
Awaiting KTX
Dx 1995 - believed to be chronic glomerulonephritis
Started CAPD Oct 2008
Cora
Member
Username: Cora

Post Number: 239
Registered: 06-2007
Posted on Saturday, April 02, 2011 - 08:05 pm:   Edit Post Delete Post Print Post

I switched to myfortic and the problems went away. I wasn't able to tolerate the regular cellcept at any dose. I am on the equivalent of 750 mg of cellcept twice per day.

Cora
Dx with T1 in 1966
Kidney tx in Minneapolis 2002
Pancreas tx in 2008
Lisa Wyeth
Member
Username: Lisamark

Post Number: 19
Registered: 06-2007
Posted on Wednesday, April 06, 2011 - 08:22 pm:   Edit Post Delete Post Print Post

I could not tolerate myfortic or MMF.

One of them (cant remember which) made me a risk taker behind the wheel of a car. I used to sit at the lights with my foot on the accelerator revving the car waiting to drag the person next to me as soon as the green light appeared. It used to make me feel mentally weird.

I have gone back to prograf, which I'm fairly normal on.......although my family may disagree
Double Lung 14th April 2004
In Auckland - New Zealand
Disease - LAM

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