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Jo
Member
Username: Oxygirl
Post Number: 252
Registered: 05-2009
| | Posted on Tuesday, May 03, 2011 - 12:45 am: | 
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My team told me today that I would be started meprol. I looked it up, and it seems to be used mostly for pneumonia tx in HIV patients, which I am not. However, their usual Bactrim for life protocol is not working for me and has steadily been bringing down my white blood cell count, to a low of 2.2. So, that was discontinued a week ago, and my cell counts rose, still under normal but better. today, was told I would start this drug.
Dx with BOOP/IPF Nov 2004
Listed Dbl Lung Tx Jan 13 2010
Double Lung tx Sept. 17, 2010
Emory Hospital Atlanta
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Jo
Member
Username: Oxygirl
Post Number: 253
Registered: 05-2009
| | Posted on Tuesday, May 03, 2011 - 12:47 am: |
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sorry, drug name is MEPRON
Dx with BOOP/IPF Nov 2004
Listed Dbl Lung Tx Jan 13 2010
Double Lung tx Sept. 17, 2010
Emory Hospital Atlanta
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Robert
Member
Username: Azone
Post Number: 16
Registered: 05-2010
| | Posted on Friday, May 13, 2011 - 08:16 am: |
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I was on bactrim for a year then my doc had me change. I had to use mepron for about 6 months for the same reason. My white blood cell count went up after 6 months so I requested that they put me back on back bactrim which they did. I have been back on bactrim for about 8 months. I did not like the time they made me take it and or the liquid taste.
Robert
Heart Transplant 8/1/2009
Stanford Hospital & Clinics
Happy To Be Alive |
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Jo
Member
Username: Oxygirl
Post Number: 256
Registered: 05-2009
| | Posted on Wednesday, May 18, 2011 - 01:10 am: |
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I agree with you, Robert. It is some VILE tasting stuff. I'm not a big baby or anything, but I do dread swallowing that stuff down every day. when I saw it the first time, I didn't know whether to swallow it or paint my house with it! It absolutely could double for yellow house paint. Ick. But, my WBC is quite low, so no more bactrim for a while. I'm hoping I'll be like you and be able to switch back one day. I don't get why mepron can't come in a pill form. I'm sure there's some brilliant scientific reason, but some scientist needs to work on changing that! 
Dx with BOOP/IPF Nov 2004
Listed Dbl Lung Tx Jan 13 2010
Double Lung tx Sept. 17, 2010
Emory Hospital Atlanta
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Topaz
Member
Username: Topaz
Post Number: 6
Registered: 09-2011
| | Posted on Saturday, September 10, 2011 - 01:44 am: |
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My husband has to take Mepron also. We call it yellow paint! He doesn't mind it, which is very unusual, since nothing has any good flavor for him these days! |
DAND33
Member
Username: Dand33
Post Number: 8
Registered: 08-2011
| | Posted on Saturday, September 10, 2011 - 12:10 pm: |
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I am on Mepron for the same reason. the ONLY problem I have had regarding my transplant on 3/1/11 has been my WBC. Bactrum played Havoc on it and also the other antibiotics. The WBC went down at one point to less than 1.0. But more importantly are the netraphils (s) that goes down with it. A series of three shots of Neupragen fixes the problem. So, like you I swig down my yellow paint every morning. Google "dan's liver blog" for more info |
Rachel
Member
Username: Rmorado
Post Number: 1
Registered: 11-2011
| | Posted on Tuesday, November 08, 2011 - 04:53 pm: |
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Hello, I had a double lung tx on May 4, 2011. I've been on Mepron since then. I asked how long does one stay on this med, and was told that it's long term. It's expensive. I had cobra and it paid for it but when I became eligible for medicare my cobra ins. stopped. I'm now responsible for 25% which comes out to $585.00/90 days. They suggested I switch to Pentam (inhalation/once a month and covered by medicare.) The only draw back is it can cause bronco spasms. The other suggestion was septra (cheap) but it can raise the potassium levels and damage your heart (need weekly labs) I decided to stay with mepron and come up with money. I'll play lotto and hope I win every three months. |
Jo
Member
Username: Oxygirl
Post Number: 267
Registered: 05-2009
| | Posted on Tuesday, November 08, 2011 - 06:34 pm: |
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Hi, Rachel. I had my tx a little over a year ago. I was placed on mepron, after I had to be taken off of bactrim b/c it lowered my wbc so much. I didn't realize it was so expensive, ouch!! I have started the pentamamine inhaled txs at the hospital once a month, and I have not had any problems. I've only had two, though. It doesn't taste so great, but you can do anything for 15 minutes. My doctors really want me on it b/c it protects us from PCP, if you're not on bactrim or similiar drug to protect from PCP. I hope this helps. Mepron is pretty vile, I have to say. Very much like yellow house paint, indeed.
Dx with BOOP/IPF Nov 2004
Listed Dbl Lung Tx Jan 13 2010
Double Lung tx Sept. 17, 2010
Emory Hospital Atlanta
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