| Author |
Message |
Hostess Rise'
Forum Leader
Username: Risa
Post Number: 12823
Registered: 05-2003
| | Posted on Monday, April 05, 2010 - 04:31 am: | 
|
Hi all
Had this idea last night to create a thread for all the new members.
If you are one of our regular members, You can add their name to the list by welcoming them or if you are a new member and reading this message please introduce yourself here by clicking on Start a NEW Thread and type your Name that appears on your post in bold in the subject area.
This should be GREAT! 
Cystic Fibrosis- dx at 2yrs. -2nd double lung tx-05 JMH
contact
Transplantbuddies@gmail.com |
|
Tralene
Member
Username: Tembry
Post Number: 1
Registered: 04-2010
| | Posted on Tuesday, April 20, 2010 - 05:32 pm: |
|
Hello to all...I am new to this wonderful site, and I am so grateful to have found you! My very best friend for the past 40 years is facing a LIVER TRANSPLANT (stage 4 and diagnosed with PBC). She is in the initial stages of figuring all of this out, and so am I. I am trying to help her by researching and learning all I can. There is so much info on the web, and I am overwhelmed trying to sift through it all. TransplantBuddies appealed to me immediately. THANK YOU! Tralene |
Karen R.
Forum Leader
Username: Relivkaren
Post Number: 4385
Registered: 07-2007
| | Posted on Wednesday, April 21, 2010 - 09:58 pm: |
|
Tralene:
Welcome to Transplant Buddies! I am so sorry to hear that your friend needs a liver transplant. What a great friend you are by helping her sort things out and get more information.
I am glad you found Transplant Buddies. We are here to support you and your friend. Please feel free to ask as many questions as you have. Also, encourage your friend to come here as well.
God Bless!
Karen
Dx: BOOP - May 2006. Rediagnosed with Bronchiolitis Obliterans Nov. 2006
Double lung transplant on Dec. 1st, 2009
Cleveland Clinic
Ohio, USA
Be kinder than necessary because everyone you meet is fighting some kind of battle. |
|
Amy O
Member
Username: Osullyal
Post Number: 1
Registered: 05-2010
| | Posted on Friday, May 21, 2010 - 09:06 pm: |
|
Hey All. I am an aunt to a 15 year old being listed for a heart. I am looking for resources to hook him up with. He was born with hypoplastic right heart and did fine with the re-piping procedures until very recently. It has all gone way bad and her needs a replacement heart. Anyway, high school is challenge enough if you are heathy. He needs some folks to hook up with who get it. He generally has a rockin attitude, but is just plain angry and says that no one he talks with gets it. He is right. Can really get it if you don't walk it. So, any ideas? Is this an all adult group? Any guidance would be great. Amy |
Hostess Rise'
Board Administrator
Username: Rise
Post Number: 13195
Registered: 05-2003
| | Posted on Friday, May 21, 2010 - 09:41 pm: |
|
Hello Amy O
Welcome!
Many of us are adults here however, there have been a few young folks who have posted. It is great to be encouraged by our members. Tell your niece to check us out. We are very understanding and friendly
|
Nikki
Member
Username: Nikki
Post Number: 1
Registered: 05-2010
| | Posted on Monday, May 24, 2010 - 04:57 pm: |
|
Hi! My name is Nikki & I'm so glad I found this site!!!! I will be receiving my kidney transplant 2 weeks from today on June 7th!!! My nephew is donating to me!!! I was so fortunate that he is a good match! My kidney disease is interstitial nephritis, & I also have liver disease, PBC & diabetes! I'm extremely nervous abt the operation. How bad is the pain? Thanks for your support! |
Hostess Rise'
Board Administrator
Username: Rise
Post Number: 13213
Registered: 05-2003
| | Posted on Monday, May 24, 2010 - 05:44 pm: |
|
Hi Nikki
Welcome to Transplant Buddies
You are very blessed to have a very loving nephew who will give you one of his kidneys.
Please join us on our kidney forum and ask all the questions that you can think of.
Thank you
Rise'
|
L.Neumann
Member
Username: Neuma2002
Post Number: 1
Registered: 06-2010
| | Posted on Saturday, June 05, 2010 - 10:50 am: |
|
Hi I'm Leshia!
I got my first kidney transplant at 13 from my mom. I will be on the wait list again starting June 21st then hopefully transplant since I have plans to get married June 18th 2011.
This site is awesome. I needed it bad. |
Mary
Member
Username: Mary
Post Number: 5
Registered: 06-2010
| | Posted on Friday, June 11, 2010 - 06:13 pm: |
|
Hi I am new here and so far am very encouraged with what I have read.
I was dx with PF 7 months ago and have just completed the lung transplant evauation at Columbia/Presp Hospital In NYC. I am on the inactive list due to the fact that I am on plavix and they want to leave me on it as long as they can. I am from NY but about 2 hours north of the city. |
red sox
Member
Username: Red_sox
Post Number: 2
Registered: 06-2010
| | Posted on Monday, June 14, 2010 - 02:32 pm: |
|
Hello everyone, my name is Preston . I'm waiting for a heart transplant & i just wanted to say that im very happy to have found this site and be able to speak with people who understand me...... |
Ronzo
Member
Username: Dollar_down
Post Number: 2
Registered: 06-2010
| | Posted on Sunday, June 20, 2010 - 09:35 am: |
|
Hi all - I am a 44 bloke going on 17 , and had a kidney/pancreas transplant on the 26/12/09 , but after a number of 'adventures' I am slowly starting to see the light ahead!
I am very pleased to have stumbled on this forum , as I have had nearly all of my questions answered in 1 hour of reading , than the entire 6 months of clinics at the post trans ward!
The many posts on drug treatment symptoms , especially depressive episodes are a must to new members , it answers 6 months worth of mysteries! [apparently it is all supposed to be fantastic according to some educators , unfortunately things may be a little different in the real world].
I am ecstatic with my new organs , and knowing what is going on in my brain now has switched on a light , and makes much of how I feel at times a lot less of an issue |
DAP1122
Forum Leader
Username: Dap1122
Post Number: 1802
Registered: 05-2008
| | Posted on Monday, June 21, 2010 - 07:00 am: |
|
Ronzo,
Hello and welcome to TransplantBuddies. It's the best forum around and filled with great people.
Hope you stop back often.
We wish you well and God Bless!!
|
leland
Member
Username: Leland
Post Number: 1
Registered: 07-2010
| | Posted on Thursday, July 15, 2010 - 01:18 pm: |
|
Hello............I'm Leland from Oklahoma. I'm 52 and on the transplant list for a liver. It's been three years since my life was turned upside down. During this time my partner of 9yrs left me my friends distance their selves from me and my family live in another state.................. Boy do I sound pathetic.
Last night I found this web site and was so pleased to read some of the discussions, I hope to get to know some of you better.
Leland |
Janet
Member
Username: Jan
Post Number: 539
Registered: 05-2003
| | Posted on Thursday, July 15, 2010 - 01:35 pm: |
|
HI Leland from OK.....I am Janet from PA, I am a donor mom. My son Joe, my youngest of four children became an organ donor almost 16 years ago...and it does my heart good to see all of the wonderful transplant recipients out there....just knowing that Joe helps at least four of them to live a longer and better life.
Good luck to you on your journey!
Hugs, Janet
Mom to Joe, who was an organ donor
6-1-80 / 8-21-94
kidneys, heart, and liver, plus lungs for research
Joe's Memory Cuddly Bears Cuddly bears made from your loved ones clothing
Joe Story
Dover, Pennsylvania
South Central PA |
|
leland
Member
Username: Leland
Post Number: 2
Registered: 07-2010
| | Posted on Thursday, July 15, 2010 - 02:20 pm: |
|
Janet .
Joe will always be in the hearts of the people he's touched!
god bless. Leland |
Hostess Rise
Board Administrator
Username: Rise
Post Number: 13688
Registered: 05-2003
| | Posted on Thursday, July 15, 2010 - 03:38 pm: |
|
Welcome Leland
I hope your visit with us will become a part of our online family. Wishing you the very best with your upcoming transplant.
Cystic Fibrosis- dx at 2yrs. -2nd double lung tx-05
Debra Fertel MD- Med. Dir. Lung Transplant/Pulmonary Hypertension Programs
Jackson Memorial Hospital
Si Pham MD, Professor of Surgery, Dir. of Thoracic Transplant & Artificial Heart Program-Miam Transplant Institute
Anas Hadeh MD, Cleveland Clinic, Weston, Florida
CF consultant- Critical Care and Sleep Medicine
Sharing Knowledge is an Invaluable Experience
Transplant Friends & Chat
Questions- Contact Hostess Rise' |
|
Bill
Member
Username: Undertakerbill
Post Number: 1
Registered: 08-2010
| | Posted on Wednesday, August 18, 2010 - 08:14 pm: |
|
Hello,
My name is Bill and I am a 41-year-old father of 3. I am a funeral director by trade. I have been ill for about two years and after months of searching for answers, I have finally been diagnosed with Familial (genetic) Amyloidosis. Since birth, my liver has been producing "sticky proteins" that have been attacking my nervous system and heart. There is no cure, but a liver transplant will stop the disease from progressing, and a heart transplant is also needed to replace my now-damaged heart.
I was officially diagnosed with this debilitating illness on May 7, 2010, and was listed with UNOS on 7/20/2010. Things moved rather quickly in that regard, but at the same time, the waiting seems worse than the illness itself.
I often wonder if it is a sin, waiting for someone to die so that I can live. This weighs heavily on my conscience.
I am still working, although slowly, as I now ambulate with assistance of a cane. I have severe peripheral neuropathy that has affected my lower legs, lower arms, gastrointestinal tract, blood pressure (which is very low), and some man-related issues.
I hope to meet some people like myself. The stories and information I have seen here already have helped tremendously.
Diagnosed with Familial Amyloidosis on 5/7/2010.
Waiting for a simultaneous heart-liver transplant at University of Maryland Medical Center; officially listed on UNOS 7/20/2010.
"Don't take your organs to heaven; heaven knows we need them here."
"The Lord did not promise life would be easy, but He did promise to go with you every step of the way." |
|
Meagan
Forum Leader
Username: Newheart14
Post Number: 1256
Registered: 01-2009
| | Posted on Wednesday, August 18, 2010 - 09:33 pm: |
|
Hi Bill,
Welcome. I am so pleased to meet you. I had a heart and liver transplant in February, 2008. There are two more ladies on the site who have had the same transplant. We all had different heart diseases. Mine started with the heart developing cardiomyopathy, and then the liver failed.
I think it's quite normal for you to think that way, but there are several people here who will tell you otherwise. I felt the same way as you, but the kind people here told me that what I received was a gift. I hope you will start to look at it that way and stop feeling guilty.
The waiting can be difficult for some, but everyone here will help you get through it. Be sure to ask any questions you like. I am sure lots of people will be along to answer them.
All the best to you in your wait.
Meagan
Forum Leader
Heart-Liver Transplant - February 14, 2008
Toronto General Hospital, Toronto, Canada
Idiopathic dilated cardiomyopathy 1991 and CHF
- Most of the important things in the world have been accomplished by people who have kept trying when there seemed to be no hope at all - Dale Carnegie
- Bumps in the road can sometimes be mountains, so I have taken up mountain climbing - Meagan
|
|
eccoblue
Forum Leader
Username: Eccoblue
Post Number: 1567
Registered: 05-2008
| | Posted on Wednesday, August 18, 2010 - 09:34 pm: |
|
Bill,
It is not a sin at all, in fact that's why all religions endorse transplantation.
Someone will die whether you wait or not, so why should that death be in vain when many others could be saved through organ donation.
Organ donation is the noblest gesture that can be made in the eye of God. To my personal way of thinking, part of the soul lives on in another.
It's a beautiful blessing!
|
DAP1122
Forum Leader
Username: Dap1122
Post Number: 1943
Registered: 05-2008
| | Posted on Wednesday, August 18, 2010 - 09:57 pm: |
|
Bill,
Hello and welcome to TransplantBuddies!!
Congratulations on being listed. That's a big step.
As Kelly correctly stated, someone will die whether you are on the list or waiting or not. That's a fact that you cannot change ...... at some point, someone will give you the ULTIMATE gift, with God's blessing.
I have always felt BLESSED (not to mention thankful / grateful) by this amazing gift.
Please keep us updated when you can. Please visit us often.
God Bless!!
|
Bill
Member
Username: Undertakerbill
Post Number: 2
Registered: 08-2010
| | Posted on Wednesday, August 18, 2010 - 10:07 pm: |
|
Thank you for words of encouragement! I will stop by often.
I forgot to mention that I am from west-central Pennsylvania. I am a big PSU fan. I am listed as a 1B on the UNOS list.
Next exodus to Baltimore is in a week on 8/27. My health insurance company gave me 3 hospitals in PA to choose from where they have transplant contracts: Thomas Jefferson, UPenn and Albert Einstein in Philadelphia. Those places are about 5 hours away.
The four closest transplant centers that I could choose from were Johns Hopkins & UMd in Maryland; Cleveland Clinic and Strong Memorial in Rochester, NY. I decided to go south rather than north. Johns Hopkins would not take my case due to my low blood pressure. They referred me to UMd and so far, I am very happy there and pleased with the team.
I look forward to my new birthday, whenever it may be.
Best Regards.
Diagnosed with Familial Amyloidosis on 5/7/2010.
Waiting for a simultaneous heart-liver transplant at University of Maryland Medical Center; officially listed on UNOS 7/20/2010.
"Don't take your organs to heaven; heaven knows we need them here."
"The Lord did not promise life would be easy, but He did promise to go with you every step of the way." |
|
Hostess Rise
Board Administrator
Username: Rise
Post Number: 14080
Registered: 05-2003
| | Posted on Thursday, August 19, 2010 - 05:34 am: |
|
Hello Bill
Welcome to TransplantBuddies I am happy you found us. Feel free to ask all the questions that you like. There are many people here who will gladly answer you to the best of their knowledge.
Wishing you the best.
Rise
Cystic Fibrosis- dx at 2yrs. -2nd double lung tx-05
Debra Fertel MD- Med. Dir. Lung Transplant/Pulmonary Hypertension Programs
Jackson Memorial Hospital
Si Pham MD, Professor of Surgery, Dir. of Thoracic Transplant & Artificial Heart Program-Miam Transplant Institute
Anas Hadeh MD, Cleveland Clinic, Weston, Florida
CF consultant- Critical Care and Sleep Medicine
Sharing Knowledge is an Invaluable Experience
Transplant Friends & Chat
Questions- Contact Hostess Rise' |
|
PTA-Diana
Member
Username: Ptadiana
Post Number: 1
Registered: 08-2010
| | Posted on Friday, August 20, 2010 - 05:10 pm: |
|
Hello! I'm here in NY, had a Pancreas Alone Transplant 9 years ago. No problem so far, great to be without diabetes!
Wondering if there are other PTA's out there?? |
Hostess Rise
Board Administrator
Username: Rise
Post Number: 14131
Registered: 05-2003
| | Posted on Friday, August 20, 2010 - 05:14 pm: |
|
Hello and welcome PTA Diana
I like how you chose PTA for Pancreas Transplant Alone. Was that your intention or is this stand for something different?
Yes we have had several members who have joined us who had a pancreas alone transplant.
Check out our kidney and pancreas forum. Please introduce yourself there as well.
The Best to you!
Cystic Fibrosis- dx at 2yrs. -2nd double lung tx-05
Debra Fertel MD- Med. Dir. Lung Transplant/Pulmonary Hypertension Programs
Jackson Memorial Hospital
Si Pham MD, Professor of Surgery, Dir. of Thoracic Transplant & Artificial Heart Program-Miam Transplant Institute
Anas Hadeh MD, Cleveland Clinic, Weston, Florida
CF consultant- Critical Care and Sleep Medicine
Sharing Knowledge is an Invaluable Experience
Transplant Friends & Chat
Questions- Contact Hostess Rise' |
|
Karen R.
Forum Leader
Username: Relivkaren
Post Number: 4723
Registered: 07-2007
| | Posted on Tuesday, August 24, 2010 - 08:51 pm: |
|
Bill:
Welcome to Transplant Buddies. I am so glad to hear that you are listed and that you are comfortable and pleased with your transplant center.
You have found a wonderful group of people that are very supportive and can help you through your transplant journey.
I hope you that you continue to visit. We look forward to getting to know you!
God Bless!
Karen
Dx: BOOP - May 2006. Rediagnosed with Bronchiolitis Obliterans Nov. 2006
Double lung transplant on Dec. 1st, 2009
Cleveland Clinic
Ohio, USA
Be kinder than necessary because everyone you meet is fighting some kind of battle. |
|
calm
Member
Username: Calm
Post Number: 1
Registered: 09-2010
| | Posted on Sunday, September 05, 2010 - 11:23 pm: |
|
Hi...I'm new to this my Mother just had a fistula put in on friday 9/3/10 Just need some questions answered.} |
Hostess Rise
Board Administrator
Username: Rise
Post Number: 14372
Registered: 05-2003
| | Posted on Monday, September 06, 2010 - 08:47 am: |
|
Hi Calm
welcome to transplant buddies. I suggest you join our kidney and pancreas forum where others can help answer your questions.
be well
Rise
|
Alinds
Member
Username: Alinds
Post Number: 5
Registered: 09-2010
| | Posted on Tuesday, September 07, 2010 - 03:52 am: |
|
I am really glad I found this site.
I had a kidney transplant on July 29th, 2010. I have polycystic kidney disease and had a bilateral nephrectomy in May, which removed 16 pounds worth of cystic kidneys.
In addition to my kidney transplant, I also had an experimental stem cell transplant from my donor. The hope is that his stem cells will allow me to develop "durable chimerism" which means that I would have both his and my immunity in my system, allowing me to keep the kidney without the use of anti-rejection meds. So far, I have shown chimerism, and if it continues they will begin tapering off my meds at 6 months.
Part of the stem cell protocol was chemotherapy and radiation. My immunity dropped ot near nothing but now has returned to normal levels (for a transplant patient).
I have already learned so much from perusing the forums and look forward to sharing more with all of you. |
DAP1122
Forum Leader
Username: Dap1122
Post Number: 1974
Registered: 05-2008
| | Posted on Tuesday, September 07, 2010 - 06:32 am: |
|
Alinds,
Hello and welcome to TransplantBuddies!!!
Congratulations on your recent transplant and the stem cell research sounds cutting edge.
Please continue to let us know how you are doing.
We hope you visit often!!
|
Sarah B.
Member
Username: Dazey82
Post Number: 2
Registered: 09-2010
| | Posted on Friday, September 17, 2010 - 07:32 pm: |
|
My name is Sarah and I am from Wenatchee, WA. I am planning on being a living kidney donor to my twin brother. We are almost 29 years old. I have 2 daughters a 2yo and a 6 mo. So far this year I have underwent a csection, Gallbladder removal and am only 3 weeks out from a bunionectomy (they had to break my foot in 2 places). I also go to school full time online. My life is hectic, but I have to do this for him if all the testing pans out. Thanks for any advice. Take care. |
Hostess Rise
Board Administrator
Username: Rise
Post Number: 14444
Registered: 05-2003
| | Posted on Friday, September 17, 2010 - 08:52 pm: |
|
Welcome Sarah B to TransplantBuddies
You are an angel. I love to hear so many love stories on this website. Your love for your brother transcends. Wishing you good health.
|
Karen R.
Forum Leader
Username: Relivkaren
Post Number: 4847
Registered: 07-2007
| | Posted on Friday, September 24, 2010 - 09:07 pm: |
|
Sarah:
Welcome to Transplant Buddies! Wow! You do have a very hectic life. What a wonderful gift you are willing to give to your brother. I do pray that you are able to be a donor for him. Let us know how things go with your evaluation.
I hope you continue to visit. We look forward to getting to know you and your brother.
God Bless!
Karen
Dx: BOOP - May 2006. Rediagnosed with Bronchiolitis Obliterans Nov. 2006
Double lung transplant on Dec. 1st, 2009
Cleveland Clinic
Ohio, USA
Be kinder than necessary because everyone you meet is fighting some kind of battle. |
|
papillonbleu
Forum Leader
Username: Papillonbleu
Post Number: 1726
Registered: 10-2007
| | Posted on Saturday, September 25, 2010 - 12:59 pm: |
|
Dear Sarah,
Welcome! I have been blessed by being a part of this forum, and I hope that you will soon feel that way too. It is so kind on your part to be willing to become a kidney donor for your brother. I hope that it will all work out for the best of all. I will keep you and your brother in my thoughts and prayers. Many hugs.
Bobbiejo
Forum Leader-Multivisceral
dx: GERD 1995, gastroparesis 2002, pseudo-obstruction of the bowel 2004
multivisceral transplant, 6 organs, 10/06/05
University of Miami/Jackson Memorial Hospital
|
|
sslgot5
Member
Username: Sslgot5
Post Number: 5
Registered: 10-2010
| | Posted on Friday, October 01, 2010 - 11:16 pm: |
|
HI I'm Tisha (sslgot5).
47 is a special number for me. I was 47 when I received my transplant, my donor (God rest his soul), was 47 when he donated his kidney, and I received my transplant on 4/7 of this year.. This website and forum is great; much better than many I've seen. God bless you all |
Hostess Rise
Board Administrator
Username: Rise
Post Number: 14502
Registered: 05-2003
| | Posted on Saturday, October 02, 2010 - 01:37 pm: |
|
Hi Tisha
How cool is the number 47. WOW!! I love hearing number stories.
Thank you for joining and thinking this is a good site You made my DAY!
|
papillonbleu
Forum Leader
Username: Papillonbleu
Post Number: 1732
Registered: 10-2007
| | Posted on Sunday, October 03, 2010 - 01:07 pm: |
|
Dear Tish,
Welcome to the forum! I am glad that you found us, and I hope that you will be as blessed as I have been to be a part of the community here. Congratulations on receiving your kidney this year. May your forward journey go well for you. Many hugs and best of wishes.
Bobbiejo
Forum Leader-Multivisceral
dx: GERD 1995, gastroparesis 2002, pseudo-obstruction of the bowel 2004
multivisceral transplant, 6 organs, 10/06/05
University of Miami/Jackson Memorial Hospital
|
|
Karen R.
Forum Leader
Username: Relivkaren
Post Number: 4894
Registered: 07-2007
| | Posted on Monday, October 04, 2010 - 10:31 am: |
|
Tisha:
Welcome to Transplant Buddies! Congratulations on your successful transplant! Wow! How cool that 47 is such a special number for you. I love things like that!!
I hope you continue to visit. This is a wonderful forum to get support and make great friends!
God Bless!
Karen
Dx: BOOP - May 2006. Rediagnosed with Bronchiolitis Obliterans Nov. 2006
Double lung transplant on Dec. 1st, 2009
Cleveland Clinic
Ohio, USA
Be kinder than necessary because everyone you meet is fighting some kind of battle. |
|
sslgot5
Member
Username: Sslgot5
Post Number: 11
Registered: 10-2010
| | Posted on Monday, October 04, 2010 - 10:52 am: |
|
Thank you! Will definitely continue to visit.. Everyone here is so encouraging and they actually answer your posts, which I found not t be the case in other forums. Thanks and God bless everyone... (I sound like Tiny Tim lol) |
ccf912010
Member
Username: Ccftransplant
Post Number: 1
Registered: 10-2010
| | Posted on Monday, October 25, 2010 - 05:50 pm: |
|
My name is Luis, I received a liver transplant on 9/1/2010. I was diagnosed with a liver disorder and eventually HCC. I was placed on the list in July 2010 and quickly received a liver. I am a thirty year police manager and will return to work after the holidays. I currently walk regularly and created a workout program to progress quicker. I knew that my condition was leading to a new liver and prepared for it mentally and physically. That I believe is one of the keys to recuperation. I will write posts from time to time, wish all a speedy recovery; think and act positive and use your second chance wisely. |
max
Forum Leader
Username: Max
Post Number: 66
Registered: 09-2010
| | Posted on Monday, October 25, 2010 - 06:23 pm: |
|
Hi Luis,
Welcome to Transplant Bubbies and congratulations on your successful liver transplant. You've arrived at a great place - please visit often as many of our members can help if you have any questions, and conversely there may be others that will gain from your experiences. It's what "FAMILY'S" do . . . . . .
max
10.20.2010 non-directed kidney donor
'OCTODONOR'
"We are continually faced with great opportunities brilliantly disguised as insoluble problems." |
|
Hostess Meagan
Forum Leader
Username: Newheart14
Post Number: 1437
Registered: 01-2009
| | Posted on Monday, October 25, 2010 - 06:44 pm: |
|
Hi Luis,
Welcome To Transplant Buddies. I am very happy that you are doing so well in such a short period of time and will soon be back at work. We look forward to hearing from you anytime.
Forum Leader
Heart-Liver Transplant - February 14, 2008
Toronto General Hospital, Toronto, Canada
Idiopathic dilated cardiomyopathy 1991 and CHF
- Most of the important things in the world have been accomplished by people who have kept trying when there seemed to be no hope at all - Dale Carnegie
- Bumps in the road can sometimes be mountains, so I have learned to climb mountains - Meagan
|
|
Karen R.
Forum Leader
Username: Relivkaren
Post Number: 4979
Registered: 07-2007
| | Posted on Tuesday, October 26, 2010 - 10:11 pm: |
|
Luis:
Welcome to Transplant Buddies! Congratulations on your successful liver transplant!
It is so good to hear that you are recovering well. I also believe that exercise is key to a successful recovery. Keep up the good work.
I hope you continue to visit. We look forward to hearing about your recovery!
God Bless!
Karen
Dx: BOOP - May 2006. Rediagnosed with Bronchiolitis Obliterans Nov. 2006
Double lung transplant on Dec. 1st, 2009
Cleveland Clinic
Ohio, USA
Be kinder than necessary because everyone you meet is fighting some kind of battle. |
|
ajaman
Member
Username: Ajaman
Post Number: 1
Registered: 10-2010
| | Posted on Wednesday, October 27, 2010 - 09:05 pm: |
|
Hi everyone
I just joined. My name's Alex and I'm a college student at Penn State, graduating in December. I recently had my four year anniversary of my kidney transplant on September 28th. |
Hostess Meagan
Forum Leader
Username: Newheart14
Post Number: 1450
Registered: 01-2009
| | Posted on Wednesday, October 27, 2010 - 09:25 pm: |
|
Hello and welcome Ajaman,
Congratulations on four years with your new kidney, and congratulations on your upcoming graduation from college.
We hope you visit often.
All the best,
Meagan
Forum Leader
Heart-Liver Transplant - February 14, 2008
Toronto General Hospital, Toronto, Canada
Idiopathic dilated cardiomyopathy 1991 and CHF
- Most of the important things in the world have been accomplished by people who have kept trying when there seemed to be no hope at all - Dale Carnegie
- Bumps in the road can sometimes be mountains, so I have learned to climb mountains - Meagan
|
|
max
Forum Leader
Username: Max
Post Number: 69
Registered: 09-2010
| | Posted on Thursday, October 28, 2010 - 07:34 am: |
|
Hi Alex,
Wecome to Transplant Buddies and congrats on you 4 year anniversary - this is awesome place and I hope visit often.
max
10.20.2010 non-directed kidney donor
'OCTODONOR'
"We are continually faced with great opportunities brilliantly disguised as insoluble problems." |
|
cindy-KAP
Member
Username: Cindykap
Post Number: 1
Registered: 10-2010
| | Posted on Thursday, October 28, 2010 - 03:38 pm: |
|
Hi everyone,
I'm new here,too. I had a pancreas transplant alone in 2001 and a living donor kidney transplant (my brother) in 2007. Both were doing just fine until 2 weeks ago when I got my labs back and my creatinine was over 4 (usually 1.1), Hb=21 (usually 10), amylase=1200 (usually well < 100), lipase >4000 (usually<100)and all the electrolytes were a mess. I went straight to my hospital and they diagnosed me with simultaneous pancreas and kidney rejection! Couldn't understand why both organs from different donors would fail at the same time. Then my bladder started to fail, as well. The whole thing was very painful and scary. I usually know what's going on, but not this time. They gave me IV immunosupressants and antibiotics. I was not responding so they scheduled me for dialysis the next day and put me on a catheter, but, for whatever reason, everything started to get better and they cancelled the dialysis. Just as suddenly as I got sick, I got better. I was in the hospital for less thn a week and back to work in one week! So what did I take from this. Prayer works. The doctors don't always have the answers and even when things seem dire, things can turn out okay. |
sslgot5
Member
Username: Sslgot5
Post Number: 22
Registered: 10-2010
| | Posted on Thursday, October 28, 2010 - 03:51 pm: |
|
Hi Cindy-KAp,
Yes prayer does work.. and yes Doctor's don't have all the answers, best you can do, is follow you're doctor's advise, be good to yourself, eat healthy and exercise.. And pray!! I've had my kidney for six months now, and I do a lot of praying.. Have had some set backs but God always sees me through and yes things turn out ok. God Bless you and Welcome!
| Come celebrate with me that every day something has tried to kill me and failed. |
|
Hostess Meagan
Forum Leader
Username: Newheart14
Post Number: 1463
Registered: 01-2009
| | Posted on Thursday, October 28, 2010 - 06:04 pm: |
|
Hi Cindy-KAP,
Welcome to Transplant Buddies. What you went through is very strange indeed. But you know what they say, "God works in mysterious ways". It sound like a miracle to me.
I hope you visit often and wish you continued good health.
Meagan
Forum Leader
Heart-Liver Transplant - February 14, 2008
Toronto General Hospital, Toronto, Canada
Idiopathic dilated cardiomyopathy 1991 and CHF
- Most of the important things in the world have been accomplished by people who have kept trying when there seemed to be no hope at all - Dale Carnegie
- Bumps in the road can sometimes be mountains, so I have learned to climb mountains - Meagan
|
|
max
Forum Leader
Username: Max
Post Number: 74
Registered: 09-2010
| | Posted on Thursday, October 28, 2010 - 07:26 pm: |
|
Hi Cindy- KAP,
Welcome to Transplant Buddies - that's an incredible story and thanks for sharing it with us. I hope you visit often.
max
10.20.2010 non-directed kidney donor
'OCTODONOR'
"We are continually faced with great opportunities brilliantly disguised as insoluble problems." |
|
Karen R.
Forum Leader
Username: Relivkaren
Post Number: 4987
Registered: 07-2007
| | Posted on Thursday, October 28, 2010 - 10:01 pm: |
|
Alex and Cindy:
Welcome to Transplant Buddies! We are glad to have you.
Alex - congratulations on your successful kidney transplant. Four years is a wonderful milestone!
Cindy - I am so sorry to hear that you went through some scary times. I too believe that prayer works. I am so glad that you are doing much better.
God Bless!
Karen
Dx: BOOP - May 2006. Rediagnosed with Bronchiolitis Obliterans Nov. 2006
Double lung transplant on Dec. 1st, 2009
Cleveland Clinic
Ohio, USA
Be kinder than necessary because everyone you meet is fighting some kind of battle. |
|
cindy-KAP
Member
Username: Cindykap
Post Number: 2
Registered: 10-2010
| | Posted on Friday, October 29, 2010 - 09:23 am: |
|
Thank you. I'm glad to be here. I have been reading so many inspiring stories here and on other threads. It's so good to have such a source of support and information. I'm at work now so I have to go, but I'll be back later. Thanks again. |
Rise
Board Administrator
Username: Rise
Post Number: 14756
Registered: 05-2003
| | Posted on Friday, October 29, 2010 - 12:37 pm: |
|
Hi Cindy
Welcome! I will be thinking of you so please update us about your situation.
I will pray that it changes quickly for the better
Best to you,
Rise'
|
DAP1122
Forum Leader
Username: Dap1122
Post Number: 2099
Registered: 05-2008
| | Posted on Tuesday, November 02, 2010 - 07:00 am: |
|
Hello and welcome to Tisha, Sara, Luis, Cindy and Alex ........
We hope you visit often!!! We are a big, happy family!!
Hugs to all, DAP
|
rubymay
Member
Username: Rubymay
Post Number: 1
Registered: 11-2010
| | Posted on Tuesday, November 02, 2010 - 01:45 pm: |
|
Hi Everyone,
I'm new here, I live in England, UK. I had a live donor transplant from my dad 11 yrs ago and it's still going strong- I feel very lucky. I have developed a lung condition due to the immunosuppressants that has complicated things a little but am doing well now. Just starting to think about the possibility of pregnancy and am hoping to get some advice and here about other's experiences. Not sure if I can have a baby myself or should look into surrogacy.
I love all the positivity on here, Rubymay x |
sslgot5
Member
Username: Sslgot5
Post Number: 24
Registered: 10-2010
| | Posted on Wednesday, November 03, 2010 - 08:30 am: |
|
Welcome RubyMay,
This place is great.. all great people and very informative..
| Come celebrate with me that every day something has tried to kill me and failed. |
|
Hostess Meagan
Forum Leader
Username: Newheart14
Post Number: 1490
Registered: 01-2009
| | Posted on Wednesday, November 03, 2010 - 12:23 pm: |
|
Hi Rubymay,
Welcome to Transplant Buddies. Congratulations on 11 years with your kidney and bless your dad for giving it to you.
There are a couple ladies who became pregnant after their kidney transplant. Perhaps you would like to post a message in that Forum.
All the best to you. I hope your lung infection clears up quickly.
Meagan
Forum Leader
Heart-Liver Transplant - February 14, 2008
Toronto General Hospital, Toronto, Canada
Idiopathic dilated cardiomyopathy 1991 and CHF
- Most of the important things in the world have been accomplished by people who have kept trying when there seemed to be no hope at all - Dale Carnegie
- Bumps in the road can sometimes be mountains, so I have learned to climb mountains - Meagan
|
|
max
Forum Leader
Username: Max
Post Number: 85
Registered: 09-2010
| | Posted on Wednesday, November 03, 2010 - 12:33 pm: |
|
Hi Rubymay,
You have found the best place on the internet. Everyone here is very supportive - we are a remarkable family (if I do say so myself).
I'm glad you found us - and hope that you visit often.
max
10.20.2010 non-directed kidney donor
'OCTODONOR'
"Giving the Gift of Life - is Life Changing" |
|
Karen R.
Forum Leader
Username: Relivkaren
Post Number: 5011
Registered: 07-2007
| | Posted on Tuesday, November 09, 2010 - 10:21 pm: |
|
RubyMay:
Welcome to Transplant Buddies! Congratulations on your successful kidney transplant!! What an incredible gift your father gave to you!
I am a double lung transplant recipient. I am not sure about the whole pregnancy thing. I had my son before I got sick. As Meagan said, there are several women on here that have had children post transplant. I think the best thing for you to do is to discuss it with your transplant team.
I hope you visit often. We look forward to getting to know you!
God Bless!
Karen
Dx: BOOP - May 2006. Rediagnosed with Bronchiolitis Obliterans Nov. 2006
Double lung transplant on Dec. 1st, 2009
Cleveland Clinic
Ohio, USA
Be kinder than necessary because everyone you meet is fighting some kind of battle. |
|
ccf912010
Member
Username: Ccftransplant
Post Number: 2
Registered: 10-2010
| | Posted on Tuesday, December 21, 2010 - 03:45 pm: |
|
Hi All,
My name is Lou and 16 weeks with a new liver. I have progressed well and in fact work out al least one hour a day. However , my ALT and AST have for the past five weeks started to rise. Has anyone else experienced this? I have had three ERCP's and three biopsy's without rejection. |
Hostess Rise'
Board Administrator
Username: Rise
Post Number: 15208
Registered: 05-2003
| | Posted on Tuesday, December 21, 2010 - 03:50 pm: |
|
Hi Lou
Welcome to Transplant Buddies and congratulations on receiving a new liver.
The best place to post your question is on our liver forum. click here
http://www.transplantbuddies.org/tbx/messages/5358/5358.html?1292962420
I am sure if you post your question in the title or something like "ALT and AST have risen" that will grab attention.
Be well
Rise'
|
max
Forum Leader
Username: Max
Post Number: 132
Registered: 09-2010
| | Posted on Tuesday, December 21, 2010 - 04:44 pm: |
|
Hi Lou,
Another - Welcome to Transplant Buddies and congratulation on your new liver.
This is a great place to get feedback from others - I hope you visit often.
max
10.20.2010 non-directed kidney donor
'OCTODONOR'
"Giving the Gift of Life - is Life Changing"
Max's Blog |
|
DAP1122
Forum Leader
Username: Dap1122
Post Number: 2249
Registered: 05-2008
| | Posted on Tuesday, December 21, 2010 - 08:47 pm: |
|
Lou,
Hello and welcome to TransplantBuddies!! And, congrats on your recent transplant. We are glad you are here. This is the best place to share transplant information on the internet.
Welcome to our family.
God Bless!!
|
papillonbleu
Forum Leader
Username: Papillonbleu
Post Number: 1821
Registered: 10-2007
| | Posted on Wednesday, December 22, 2010 - 01:31 pm: |
|
Welcome, Lou! Congratulations on your liver transplant! I have found the people here to be very kind and a blessing, and I hope you may find it thus also. I hope you may find the reason for the rise in the AST and ALT so that they can be gotten back to normal. Best of wishes.
Bobbiejo
Forum Leader-Multivisceral
dx: GERD 1995, gastroparesis 2002, pseudo-obstruction of the bowel 2004
multivisceral transplant, 6 organs, 10/06/05
University of Miami/Jackson Memorial Hospital
|
|
Willy
Member
Username: Billwilly
Post Number: 1
Registered: 12-2010
| | Posted on Wednesday, December 29, 2010 - 05:57 pm: |
|
My name is Bill and I registered here as BillWilly. I'm a 69+year old male who had a left lung transplant June 22, 2010 at Duke Univ. Hospital, Durham, NC. I'm retired from the Air Force and a major elevator corporation. Married to Peggy for 50 years this past October 2010. Two children, daughter married; son is a widower. Three grandchildren and all live in the Charlotte, NC area.
I look forward to perhaps communicating with each of you. This web site is new to me, so bear with any mistakes I may make. |
Jack
Forum Leader
Username: Johnhollenbach56
Post Number: 381
Registered: 12-2009
| | Posted on Wednesday, December 29, 2010 - 06:54 pm: |
|
Hello Bill, welcome to Transplant Buddies, now I know that you said much of this in your opening post, but when you get a moment you might want to create a signature block (if you scroll up you will see several examples) most folks list their transplant, the date and the center, also the underlying cause or ailment that got them there (this avoids having to answer the same questions over and over). To do this go to the top of the page and click on the 'Edit Profile' tab and follow the prompts. I look forward to communicating with you . . .
Stay well,
Jack Hollenbach
jack_hollenbach@hotmail.com
Received double lung transplant August 2, 2007 for COPD at UCSD Thornton Hospital, San Diego, CA
Live each day to your fullest, for it is a gift to be treasured |
|
Hostess Meagan
Forum Leader
Username: Newheart14
Post Number: 1690
Registered: 01-2009
| | Posted on Wednesday, December 29, 2010 - 07:45 pm: |
|
Hi Willy,
Welcome! Congrats on your single lung transplant and also on your fifty year marriage. That is wonderful. Don't worry about mistakes around the site. We all make mistakes. Hope we hear a lot from you.
Wishing you great health in 2011.
Meagan
Forum Leader
Heart-Liver Transplant - February 14, 2008
Toronto General Hospital, Toronto, Canada
Idiopathic dilated cardiomyopathy 1991 and CHF
- Most of the important things in the world have been accomplished by people who have kept trying when there seemed to be no hope at all - Dale Carnegie
- Bumps in the road can sometimes be mountains, so I have learned to climb mountains - Meagan
Meagan's Blog |
|
DAP1122
Forum Leader
Username: Dap1122
Post Number: 2268
Registered: 05-2008
| | Posted on Wednesday, December 29, 2010 - 07:50 pm: |
|
Hello Bill, and welcome to TransplantBuddies!!
We are glad you found us and hope you visit often. Congrats on your recent transplant and your great marriage as well.
Hope you visit us often.
DAP
|
papillonbleu
Forum Leader
Username: Papillonbleu
Post Number: 1832
Registered: 10-2007
| | Posted on Thursday, December 30, 2010 - 06:31 pm: |
|
Welcome, Bill! I have found being a part of this forum here to be a blessing and hope you may find it to be the same to you. Congratulations on your lung transplant. May each new day bring you new reasons to smile and hope.
Bobbiejo
Forum Leader-Multivisceral
dx: GERD 1995, gastroparesis 2002, pseudo-obstruction of the bowel 2004
multivisceral transplant, 6 organs, 10/06/05
University of Miami/Jackson Memorial Hospital
|
|
Hostess Rise'
Board Administrator
Username: Rise
Post Number: 15288
Registered: 05-2003
| | Posted on Thursday, December 30, 2010 - 06:36 pm: |
|
Hello BillyWilly
Cool name! Welcome to our online family.
|
raza
Member
Username: Raza707
Post Number: 3
Registered: 02-2011
| | Posted on Sunday, February 06, 2011 - 02:51 am: |
|
hi i m raza bhatty from pakistan age 21 i m new to this site and i m on this site coz i had a kidney transplant operation 8 years back...... |
Hearron
Member
Username: Hearron
Post Number: 1
Registered: 03-2011
| | Posted on Friday, March 04, 2011 - 10:15 am: |
|
I'm new to the forum. Got a kidney transplant in May 10. Had rejection episode, then IVIG, which stopped the rejection. The kidney seems to be ok now but I live in fear every day that it will reject for some reason. Meds have me gaining 20 pounds post transplant (prednisone) with the moon face, easy bruising on my arms, hair falling out, etc.) But I am very grateful for my kidney. |
David
Member
Username: David359
Post Number: 1
Registered: 04-2011
| | Posted on Wednesday, April 20, 2011 - 07:46 am: |
|
Greetings.
just wanted to say hello .. my first day to the forums .. I had a heart transplant june 14 2010 , 10 months now doing very very well, life's is GREAT again !! |
HM QASIM
Member
Username: Hm_qasim
Post Number: 1
Registered: 04-2011
| | Posted on Wednesday, April 20, 2011 - 11:55 am: |
|
HI EVERYONE I AM HM QASIM FROM PAKISTAN
I HVE TRANSPLANTED KIDNEY 2.5 YRS BACK |
Hostess Rise'
Board Administrator
Username: Rise
Post Number: 15993
Registered: 05-2003
| | Posted on Wednesday, April 20, 2011 - 12:17 pm: |
|
Welcome HM Qasim to Transplant Buddies
Thank you for joining us.
|
Going for Gold
Member
Username: Mistproductions
Post Number: 12
Registered: 03-2011
| | Posted on Thursday, May 05, 2011 - 06:41 pm: |
|
Jill Morton, kidney recipient and gold medalist, will be competing in the World Transplant Games in Sweden this summer. She is filming a documentary to help promote organ donation and tell her miraculous story with her donor.
Please help spread the word and raise awareness!! http://www.mistproductions.net
Her latest update can be found athttp://www.youtube.com/watch?v=IULpZV0oB0E Check out the latest Going for Gold update!! The World Transplant Games are getting close!! |
Carole Stanley
Member
Username: Dcstanley
Post Number: 1
Registered: 05-2011
| | Posted on Wednesday, May 18, 2011 - 08:00 am: |
|
Hi I just joined your group as my BF just sent me this link. I am waiting for my call from Cleveland Clinic for a double lung TX. Have been status 7 for about a year and a half due to numorous problems but am again actively listed. Oops sorry my name is Carole Stanley and I am 59 years old. And I live in Cortland, NY. |
Hostess Rise'
Board Administrator
Username: Rise
Post Number: 16203
Registered: 05-2003
| | Posted on Wednesday, May 18, 2011 - 12:02 pm: |
|
Hi Carole,
Welcome! Tell your boyfriend I said thank you for sending you our way.
You might want to join our heart and lung forum and introduce yourself there as well.
Take care of yourself,
Rise'
|
DAP1122
Forum Leader
Username: Dap1122
Post Number: 2625
Registered: 05-2008
| | Posted on Thursday, May 19, 2011 - 09:26 am: |
|
Hi Carole and welcome to TransplantBuddies!!!
I am glad you are here!
DAP
|
franjac
Member
Username: Franjac
Post Number: 1
Registered: 09-2011
| | Posted on Tuesday, September 13, 2011 - 05:52 pm: |
|
I received my kidney transplant on June 4, 2004. I just discovered this forum and and very happy to find it. I've lived very happily with few complications, excepting a rejection episode that was overcome by infusions of thymoglobulin in 2008. |
bill s
Member
Username: Bill_s
Post Number: 40
Registered: 08-2011
| | Posted on Tuesday, September 13, 2011 - 07:01 pm: |
|
Hi, My name is Bill and I got my kidney transplant on Feb 15, 11, at UCSF, from a male cadaver, in his 50's. I nursed my kidneys for 7-8 years after learning that I had CKD (don't know the cause but all 3 of my boys have the initial stages of kidney disease) and just barely avoided dialysis. Currently, I am on 1500mg Cellcept, 4mg Tacrolimus and 5mg Prednisone for immunosuppression. My creatinine level is in the 1.7-2.0 range. I'm 74 and these drugs are causing me to be very tired and fatigued - I have to force myself to exercise. Oddly, I can eat well but am currently losing weight. I look forward to exchanging info with the other members and have already made a number of comments and obtained suggestions from various threads. Thanks very much to those who have made these.interactions possible.
Bill |
Closed: New threads not accepted on this page
