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Hostess Risé
Board Administrator
Username: Rise

Post Number: 17788
Registered: 05-2003


Posted on Friday, July 19, 2013 - 04:57 pm:   Edit Post Delete Post Print Post

I am sure many of us have encountered the untouchable or a nicer version of Nurse Ratched in our time.

Can you think of a situation where you felt uneasy with getting the correct medical attention you needed?

Did you feel that the nurse who was taking care of you was not really taking good care of you?

What did you do about it and what was your outcome? Proper communication is key.
CF- dx at 2yrs. 2nd double lung tx-05 JMH
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Jack
Forum Leader
Username: Johnhollenbach56

Post Number: 588
Registered: 12-2009


Posted on Friday, July 19, 2013 - 05:07 pm:   Edit Post Delete Post Print Post

Earlier this year I had a problem with a new nurse in our transplant group. I had had my meds changed (trying to get correct levels for Rapamune), The doctor instructed me to get bloodwork in a few days which I did and then called in to let the team know.

The nurse failed to call me back to inform me the doctor wanted to readjust my meds, I found out when I called in the following week and she mentioned in an off handed manner the adjustment that had been made the prior week.

Fortunately, our center has someone that monitors the medical staff for patients. Turned out a few of us were having the same sort of problem and this person came after our normal support meeting to discuss the problem, which seems to have now been resolved.
Jack Hollenbach
Received double lung transplant August 2 & 3, 2007 for COPD at UCSD Thornton Hospital, San Diego, CA

Live each day to your fullest, for it is a gift to be treasured
Admin
Board Administrator
Username: Admin

Post Number: 117
Registered: 05-2003
Posted on Friday, July 19, 2013 - 05:07 pm:   Edit Post Delete Post Print Post

I have noticed that the people who generally had a poor attitude seemed to have self esteem issues. I am talking in general to all people who I have encountered in doctors offices in general. Thankfully, I have not had any trouble in many years but I do remember from time to time thinking, i wish that nurse was nicer. I now try and look beyond who they are. I try and see the possibility that their job is stressful and how unhappy their life must be.

Even though some of these thoughts could be true, there is no excuse to treat a sick patient with poor behaviour/manners and speak to them in a condescending tone.
Hostess Risé
Board Administrator
Username: Rise

Post Number: 17790
Registered: 05-2003


Posted on Friday, July 19, 2013 - 05:09 pm:   Edit Post Delete Post Print Post

Hi Jack
WOW! We both posted a new message at the same time:-)
Thank you for sharing.
CF- dx at 2yrs. 2nd double lung tx-05 JMH
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NeedKidneyHELP
Member
Username: Needkidneyhelp

Post Number: 13
Registered: 07-2013
Posted on Tuesday, August 20, 2013 - 01:27 pm:   Edit Post Delete Post Print Post

What about mean doctors? Most of us have either seen them or dealt with them. I have seen doctors be very cold hearted and turn down patients flat for a transplant in the dialysis clinic!
papillonbleu
Forum Leader
Username: Papillonbleu

Post Number: 2266
Registered: 10-2007


Posted on Wednesday, August 21, 2013 - 07:59 am:   Edit Post Delete Post Print Post

I have dealt with a few doctors who were not very understanding of the patient. I had one put me to tears, and he did not seem to care nor would he listen to me as the patient. However, for the most part, I have been fortunate to meet with doctors who have been mostly supportive especially if they feel like they know what to do. The hardest for me is when a doctor seems to pull away from you at a point when he is not certain what to do anymore. I would rather the doctor be open and honest if he does not know what to do. It is a difficult feeling to bear when you are ill and your doctor is dealing in vagueness and becomes more difficult to reach in person and by phone, just making one more uncertain and for me more scared. I am thankful that I feel the doctors I have now will be more honest with me, and I am honest with them as well. I believe it is a partnership that requires effort on both sides.
Bobbiejo
Forum Leader-Multivisceral
dx: GERD 1995, gastroparesis 2002, pseudo-obstruction of the bowel 2004
multivisceral transplant, 6 organs, 10/06/05
University of Miami/Jackson Memorial Hospital

Lee
Member
Username: Lyons1988

Post Number: 13
Registered: 08-2013
Posted on Thursday, August 22, 2013 - 04:23 am:   Edit Post Delete Post Print Post

Morning

when i had my transplant done the nurses on the ward where horrible. i had to keep asking for my dressing to be changed as i was bleeding everywhere, waited aprox 2 hours before anythin was done,
when i couldn't walk at all attached to all the machines and needed the toilet took them about 1 hour to get that. very slow at there jobs..

as for the doctors they where very rare, and different every day.. it was hard to relate to one.

Lee
Hostess Risé
Board Administrator
Username: Rise

Post Number: 17809
Registered: 05-2003


Posted on Thursday, August 22, 2013 - 12:41 pm:   Edit Post Delete Post Print Post

Just to note- Need Kidney Help has been banned so when you read his comments do not take them seriously.

Bobbiejo- I am sorry that you received poor medical treatment from a doctor. It is difficult to imagine how a doctor could be rude and upset you. What is wrong with these doctors?
Why do they even go to medical school or choose a difficult field of medicine?

Money and security is not everything.

Lee- I am sorry to hear that you were not treated fairly during your healing period. Are you able to contact help at a higher level in the hospital?
CF- dx at 2yrs. 2nd double lung tx-05 JMH
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