| Author |
Message |
Peggy
Member
Username: Pjr51
Post Number: 2
Registered: 07-2013
| | Posted on Tuesday, July 30, 2013 - 11:57 am: | 
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Hi I have pulmonary fibrosis and am confined to the hospital at the Cleveland Clinic. Just found this site so thought I would join. I just got the word yesterday that I am on the list. So now I just have to wait for the gift of new lungs or lung. I feel hope for the first time since my diagnoses. |
Jay Lackritz
Forum Leader
Username: Jay_ny
Post Number: 552
Registered: 01-2007
| | Posted on Tuesday, July 30, 2013 - 02:23 pm: |
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Congratulations, Peggy.
I had my double lung transplant in New York back in 2007, and I am one happy camper!
Couldn't breathe, couldn't even walk much before my transplant, and was told I had less than 2 years left to live. I was lucky enough to get a double had haven't looked back since. Had some minor bumps in the road over the last 6+ years, but I am doing great.
Hope your wait is not too long.
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Jack
Forum Leader
Username: Johnhollenbach56
Post Number: 591
Registered: 12-2009
| | Posted on Tuesday, July 30, 2013 - 03:14 pm: |
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Congratulations Peggy, may your wait be short and recovery swift and 'bump-free'. Please feel free to ask any questions you may have - there are plenty of folks here who have already gone through what you are (and there is no such thing as a stupid question).
Stay well
Jack Hollenbach
Received double lung transplant August 2 & 3, 2007 for COPD at UCSD Thornton Hospital, San Diego, CA
Live each day to your fullest, for it is a gift to be treasured |
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Hostess Risé
Board Administrator
Username: Rise
Post Number: 17798
Registered: 05-2003
| | Posted on Tuesday, July 30, 2013 - 05:57 pm: |
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Welcome Peggy to Transplant Buddies
I wish you the best with your road to transplant. I hope you will stay with us and contribute your thoughts and feelings.
Have you visited our sister site http://transplantfriends.com
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LadyDi
Forum Leader
Username: Ladydi
Post Number: 2810
Registered: 03-2008
| | Posted on Wednesday, July 31, 2013 - 08:40 pm: |
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Congratulations Peggy! May you have a short wait!
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papillonbleu
Forum Leader
Username: Papillonbleu
Post Number: 2258
Registered: 10-2007
| | Posted on Thursday, August 01, 2013 - 06:44 am: |
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Welcome Peggy! It is marvelous to hear that you have now made it onto the list. May your wait be short, and may you be able to keep up your strength and hope as much as possible until that time and beyond. Best of wishes and many hugs.
Bobbiejo
Forum Leader-Multivisceral
dx: GERD 1995, gastroparesis 2002, pseudo-obstruction of the bowel 2004
multivisceral transplant, 6 organs, 10/06/05
University of Miami/Jackson Memorial Hospital
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DAP1122
Forum Leader
Username: Dap1122
Post Number: 3465
Registered: 05-2008
| | Posted on Monday, August 05, 2013 - 07:04 am: |
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Congrats on being listed Peggy!!
I volunteer at CCF each Wednesday, so if you need a visitor, just let me know where you are located and I'll stop by. I'm a heart recipient, but I see many lung transplant folks on floor J-8-2.
I wish you a short wait.
~ Don
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Rita
Forum Leader
Username: Rita
Post Number: 940
Registered: 06-2003
| | Posted on Monday, August 05, 2013 - 02:52 pm: |
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That is wonderful you are on the list. I hope it happens very soon for you!
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Paul
Member
Username: Paul_palmer1963
Post Number: 4
Registered: 01-2014
| | Posted on Thursday, January 02, 2014 - 08:18 am: |
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Hi im tim, ive got chronic rejection. Lost 25% of lung capacity over a 12 month period... change of tablets did not work so they are now arranging radiation treatment in February.
i just would like to know if anyone has any advice to offer on radiation treatment.
also should i carry on with my job as a plasterer? Regards |
Hostess Risé
Board Administrator
Username: Rise
Post Number: 17965
Registered: 05-2003
| | Posted on Thursday, January 02, 2014 - 09:14 am: |
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Hi Paul
I am sorry to hear this news but if you are stable that is a good thing. What does your doctor say about the work that you do. I do not like being around chemicals. What does your job entail?
Where are you from? Please return to update us. I hope all goes well!
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Paul
Member
Username: Paul_palmer1963
Post Number: 5
Registered: 01-2014
| | Posted on Sunday, January 05, 2014 - 02:59 pm: |
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Lung capacity is still losing ... Im just crossing my fingers with regard to the radiation treatment but cant seem to find much information on it. Im self employed but the doctors will not commit themselves as to whether i should stop working. Just wondered if anyone else had any advice.
I am from the UK |
