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Nancy
Member
Username: Nancyb01

Post Number: 1
Registered: 11-2013
Posted on Friday, November 08, 2013 - 12:29 am:   Edit Post Delete Post Print Post

Hello,
I was diagnosed with COPD about three years ago. Had trouble after using a chemical for about a year. It was a germicide that made me cough and wheeze. In hindsight I see now. I had an open lung biopsy in June. The labs diagnosed me with constrictive bronchiolitis or bronchiolitis obliterans. It is rare. I found some old posts out there. I have found so few people for comparison and info. Any assistance welcomed. It seems that this usually ends with transplants. I am 46 so I figure eventually... Being evaluated at Duke in December. FEV! has gone from 39 to around 30. I hit 27 once but was getting sick I think. Anyone else out there?
Hostess Risé
Board Administrator
Username: Rise

Post Number: 17924
Registered: 05-2003


Posted on Friday, November 08, 2013 - 01:36 pm:   Edit Post Delete Post Print Post

Hi Nancy
Welcome to Transplant Friends! I am sorry to hear that you were badly affected by a chemical. They can cause all horrible things to our health.
Sick around here, ask your questions preferably in our lung forum where you will receive the most feedback.
Take care
Rise'
CF- dx at 2yrs. 2nd double lung tx-05 JMH
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