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ajs
Forum Leader Username: Ajs
Post Number: 780 Registered: 03-2008
| Posted on Wednesday, July 03, 2013 - 12:36 pm: |
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Hey All, Just had my six-monther at Duke on Monday with Dr Palmer. All my numbers were good, and consistent with January, except my HDL and 25-75 on the PFTs. My HDLs went from 40 to 57, and my 25-75 from 2.43 to 2.74 (2.17 a year ago). The doc was pretty happy and amazed that my 25-75 could go up so much, this far out (4.9 years). That is the small airway number, and Dr Palmer said once people get this far out, its the first thing he looks at in clinic. BOS starts in the small airways. The 2.74 matched my highest level since sometime in the first year. He asked me what I was doing differently and other than adding Astaxanthin to my regiment, its just the hard, consistent exercise and the resulting 25 lb. weight loss. So I guess what I would say to everyone is, don't poo-poo the value of exercise. Make yourself do it to get the best chances long term. I wasn't good enough about it until last October. Good health to all!
Double-Lung transplant at Duke on 10/27/08 Pulmonary Fibrosis with traction bronchiectasis http://healthierlungs.com Live each day as if you were living forever, and live each moment as if it were your last.
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Hostess Risé
Board Administrator Username: Rise
Post Number: 17776 Registered: 05-2003
| Posted on Wednesday, July 03, 2013 - 04:43 pm: |
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GREAT news AJS Yes exercise is so important. I am proud of all the pushups that I can do. Did you lose a lot of belly fat? If so, do you think that was a contributing factor to improved lung function? Keep up the Awesome Work
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papillonbleu
Forum Leader Username: Papillonbleu
Post Number: 2245 Registered: 10-2007
| Posted on Wednesday, July 03, 2013 - 06:36 pm: |
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I am so glad to hear that you are doing so well. The good news of others uplifts my heart with joy. I also agree in the importance of exercise. Even though I need to gain much weight, my doctors stressed that I need to exercise so as not to get weaker. As long as I do not overdo, I definitely find that exercise can usually help me to feel better. If you do not mind me asking (as I am not a lung recipient), what is the 25-75 referring to? What does it measure exactly? What is BOS and PFT? Does HDL stand for high density lipoprotein? I am just curious and trying to understand better what others are experiencing. May you continue to find better health and plenty of reasons to hope and smile. Blessings to you.
Bobbiejo Forum Leader-Multivisceral dx: GERD 1995, gastroparesis 2002, pseudo-obstruction of the bowel 2004 multivisceral transplant, 6 organs, 10/06/05 University of Miami/Jackson Memorial Hospital
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ajs
Forum Leader Username: Ajs
Post Number: 781 Registered: 03-2008
| Posted on Thursday, July 04, 2013 - 11:03 am: |
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Hi Bobbiejo, The 25-75 is the part of the mandatory pulmonary function test (PFT) that measures the function of your small airways. That is generally where BOS (Bronchiolitis Obliterans Syndrome or chronic rejection) starts. Since its impossible to get the bronchoscope in to those airways during a bronchoscopy, early detection of BOS is often predictable by this number. As I said, with patients as far out as me, that is the first number they look at during clinic. You have the right meaning for HDL, which is your beneficial cholesterol. Over >59 is considered a negative risk factor for heart disease, in other words, a good thing. Happy 4th of July!
Double-Lung transplant at Duke on 10/27/08 Pulmonary Fibrosis with traction bronchiectasis http://healthierlungs.com Live each day as if you were living forever, and live each moment as if it were your last.
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papillonbleu
Forum Leader Username: Papillonbleu
Post Number: 2247 Registered: 10-2007
| Posted on Thursday, July 04, 2013 - 12:15 pm: |
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Thank you so much for taking the time to answer my questions. It makes me appreciate even more your good news and hard work to accomplish what you have. May you also have a very Happy 4th of July!
Bobbiejo Forum Leader-Multivisceral dx: GERD 1995, gastroparesis 2002, pseudo-obstruction of the bowel 2004 multivisceral transplant, 6 organs, 10/06/05 University of Miami/Jackson Memorial Hospital
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Kt
Member Username: Kt
Post Number: 21 Registered: 02-2010
| Posted on Sunday, July 07, 2013 - 03:35 am: |
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Hi ajs, All great news! Just wondering what you do for exercise? I received my new lungs 7 months ago and am curious about others routines. Thanks
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Hostess Risé
Board Administrator Username: Rise
Post Number: 17780 Registered: 05-2003
| Posted on Sunday, July 07, 2013 - 09:36 am: |
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Hi KT Congratulations and blessings to your Donor Family. I do not remember you sharing the great news.
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ajs
Forum Leader Username: Ajs
Post Number: 783 Registered: 03-2008
| Posted on Sunday, July 07, 2013 - 10:19 am: |
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Hi KT, Congrats on the new lungs! Keep those Vitamin D levels up. As far as cardio, it's mostly on my elliptical. The new thing now is interval training, so I do 30 minutes that contains 3 minute bursts to a level I have a hard time maintaining for the whole three minutes (but I do). Then I row for 30 minutes, and do 30 minutes of a floor routine I have worked out. It involves laying with your knees bent and then curling up towards your knees, while keeping your lower back on the ground. I was shown this by an old friend as a way to get great ab work without putting stress on your lower back. It also strengthens your neck. I can now hold that position for the entire 30 minutes. No crunches, no hands behind the neck, just hold. Then in five minute intervals, I use two five pound hand weights to curl down to the floor and up, along my body. And very frankly, I do as much 'bedroom cardio' as I can. One of the best, most fun exercises available! TMI?
Double-Lung transplant at Duke on 10/27/08 Pulmonary Fibrosis with traction bronchiectasis http://healthierlungs.com Live each day as if you were living forever, and live each moment as if it were your last.
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