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Message |
TeflonDiva
Member
Username: Teflondiva
Post Number: 1
Registered: 10-2013
| | Posted on Thursday, October 17, 2013 - 05:58 pm: | 
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Hi Friends,
I am a 32 year old single mom from NJ who is facing a heart transplant. I am taking all the necessary tests now so i can be cleared to go on a transplant list. My issue is that I am not close to my family and have an extremely small circle of acquaintances. I am aware that I will need round the clock support once I go through the transplant process, but unfortunately I do not have anyone in my life who can provide that support for me. My family has been asked and they clearly have other things to do. My friends all have other obligations (work, children...etc). Does anyone have any ideas for me. I really would hate for this to be a reason to keep me from a transplant list. My children are young (9 and 4) and they need me to be here as long as possible. I am scared and frustrated. HELP!! |
papillonbleu
Forum Leader
Username: Papillonbleu
Post Number: 2286
Registered: 10-2007
| | Posted on Friday, October 18, 2013 - 06:17 pm: |
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Do you belong to a church? I have sometimes received support from mine although my need was not as great because my immediate family has really been a great support for me. Are there any local transplant groups in your area? If so, some of the members might understand what you are going through and be able to offer some help or direct you to where you might find some. Are there any other type of community groups that might be able to help? I am sorry that your own friends and family are not willing to commit to helping you through getting a transplant. I hope that you are able to find the support that you need. I will keep you in my thoughts and prayers. Many hugs.
Bobbiejo
Forum Leader-Multivisceral
dx: GERD 1995, gastroparesis 2002, pseudo-obstruction of the bowel 2004
multivisceral transplant, 6 organs, 10/06/05
University of Miami/Jackson Memorial Hospital
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Hostess Risé
Board Administrator
Username: Rise
Post Number: 17886
Registered: 05-2003
| | Posted on Friday, October 18, 2013 - 06:35 pm: |
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Hi Teflon Diva
I like your nickname.
Do you have any friends who can pitch in and take care of your children?
If so, could you afford to get hired help during the recovery period?
I like Bobbiejo's idea about Church.
Can you contact old friends to see if they know someone who can relate to your situation who might be willing to move in with you for awhile until you are fully recovered.
Keep an open mind because there are really great people in this world.
If you tell us more about yourself perhaps we can help you with some ideas.
In the meantime, please join us and share
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Jack
Forum Leader
Username: Johnhollenbach56
Post Number: 611
Registered: 12-2009
| | Posted on Friday, October 18, 2013 - 06:53 pm: |
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Where abouts in NJ are you? I have several friends, several that are nurses back there - they may know of some additional resources that could help . . .
Stay well,
Jack Hollenbach
Received double lung transplant August 2 & 3, 2007 for COPD at UCSD Thornton Hospital, San Diego, CA
Live each day to your fullest, for it is a gift to be treasured |
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bill s
Member
Username: Bill_s
Post Number: 137
Registered: 08-2011
| | Posted on Friday, October 18, 2013 - 07:07 pm: |
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Hi TeflonDiva, in addition to great ideas above, your transplant center will have some good ideas to help you as they see many types of problems and often have a network to help support their patients. Contact them immediately to get the ball rolling and alleviate the stress you are currently going through. You don't say where you are in NJ but many of the larger cities have agencies that can help you. I googled transplant help groups New Jersey, and found several listed throughout the state. In addition, most hospitals maintain or coordinate with support groups. I'd be surprised if you weren't able to find one rather quickly. Keep a positive outlook, I'm sure you'll be successful. Good luck with your new heart - sounds like you have a lot to live for. |
Hostess Risé
Board Administrator
Username: Rise
Post Number: 17889
Registered: 05-2003
| | Posted on Friday, October 18, 2013 - 07:09 pm: |
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Jack
You have brought tears to my eyes with your response. Bless your Heart!
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Hostess Risé
Board Administrator
Username: Rise
Post Number: 17891
Registered: 05-2003
| | Posted on Friday, October 18, 2013 - 07:19 pm: |
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Thank you Bill
You are an Angel
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