| Author |
Message |
Cassie
Member
Username: All4him426
Post Number: 2
Registered: 09-2013
| | Posted on Sunday, August 17, 2014 - 07:50 pm: | 
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I am 5 years post double lung transplant. I currently live on the east coast. However I am really interested in living in the UK. Does anybody have experience, or knowledge about moving health care to another country? |
Hostess Risé
Board Administrator
Username: Rise
Post Number: 18072
Registered: 05-2003
| | Posted on Tuesday, August 19, 2014 - 12:48 pm: |
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Hi Cassie
WOW! What an interesting question. I have no clue. Have you talked to your transplant center to see if they have any relationships with other transplant centers in Europe?
Just curious- do you have any family or friends in Europe?
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Jay Lackritz
Forum Leader
Username: Jay_ny
Post Number: 602
Registered: 01-2007
| | Posted on Tuesday, August 19, 2014 - 01:43 pm: |
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Hi, Cassie,
I have no experience with transplantees moving to another country, but you will need to find the local transplant center and get them to accept you as a post transplant patient.
Here is a list of the lung transplant centers that I know about:
Freeman Hospital, Newcastle upon Tyne
Papworth Hospital, Cambridge
Harefield Hospital, London
Queen Elizabeth Hospital, Birmingham
Wythenshawe Hospital, Manchester
As far as I know, they do not do a lot of lung transplants in England, and have a very small donor pool, but that shouldn't matter, as long as you can get doctors who are knowledgeable about immunosuppressives, and the care of a lung transplant patient. I don't know if you automatically get NHS coverage as soon as you move, or if there is a waiting period. I know that some in England also have private insurance coverage so they can get premium care and avoid the wait times for some procedures. You know that the drugs we take can make your kidneys fail, so you have to be closely monitored, and might end up needing a kidney transplant, so it's important to connect with a transplant center there. I also don't know about coverage for drugs, and you know that if you change drug manufacturers, you need to be monitored to make sure that you have the correct levels in your blood, so there is a lot to think about. Perhaps you can find some UK residents on Transplant Friends who can answer some of the basic questions for you. I know that over the years I have discussed lung transplants with people who live in England, but my memory is not that good any more.
Best of luck finding out all you need to know, and please let us know, so we can help any others who do the same as you.
Here's a couple of useful web sites that might help:
http://www.nhs.uk/conditions/lung-transplant/pages/introduction.aspx
http://ukhealthcare.uky.edu/lung-transplant/
http://www.newcastle-hospitals.org.uk/services/transplantation_transplant_heart-and-lung-transplants.aspx
http://www.bts.org.uk/BTS/Information_Resources/Information_for_Patients/Lungs/BTS/Information_Resources/Lung.aspx
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Cassie
Member
Username: All4him426
Post Number: 6
Registered: 09-2013
| | Posted on Thursday, October 23, 2014 - 06:00 pm: |
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No Hostess Risé. I have no family there. I'm just sick of living here. I am currently not working, living with my parents, and spend all of my time watching tv and movies. I feel like I am wasting these lungs... and I'm just fed up. |
Hostess Risé
Board Administrator
Username: Rise
Post Number: 18100
Registered: 05-2003
| | Posted on Thursday, October 23, 2014 - 06:59 pm: |
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Hi Cassie!
Don't be so hard on yourself. If you can physically pick up and move to the UK why can't you find a part time job and possibly move out on your own?
Take care!
THANK You JAY for your insights and resources 
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Cassie
Member
Username: All4him426
Post Number: 7
Registered: 09-2013
| | Posted on Friday, October 24, 2014 - 11:39 am: |
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I can't get a job cause I am on disability. I want off but I need it for health insurance |
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