Hermit
Member Username: Hermit
Post Number: 18 Registered: 05-2008
| Posted on Tuesday, November 04, 2014 - 05:39 pm: |
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Hi everybody I know that I haven't been around for people much, but I want to let you know that I am still around, still kicking, and doing fairly well health-wise. I did get diagnosed with diabetes back in May but that was hardly unexpected. It was more of an official diagnosis for the sake of my chart, but I have found that I am having trouble adjusting to yet another diagnosis. Another thing I'm struggling with is a change in policy in our clinic. I was officially the first patient with Cepacia to be transplanted here in Vancouver ( they used to have to go to Toronto). However, now that there are xa few of us around, the clinic decided to make a rule that we are not allowed to wait with the other transplant people. I really thought that I would not have to deal with the loneliness and feeling of being ostracized after I got my transplant. Other than online, I have no way of seeing or visiting anyone who has that same knowing smile of shared experience. Even online, I feel like everyone has either passed away, or they don't really keep in touch much. It doesn't help that I am a hermit, as my name suggests. Anyway, I want you all to know that I value everything you write, and that even if I am not logged in, I am always lurking around reading. Another question I have is this: Is there some other website where CFers go to communicate that I am ignorant of? For example, there must be somewhere where I can read what happened to Kina (Nicole Boyce), who passed away recently. I figured her passing would leave a bigger wake in the online community...but none of the sites have mentioned anything at all. Where are all of the CFers going? Anyway, if anyone as any idea, anything would be helpful. I am only aware of two online communities: CF2chat and cysticfibrosis.com. Sorry if this is not at all relevant here! Health and happiness to all of you, Chris |