Join Our Mailing List
Email:
Visit our blog  Find us on Google+  Find us on Pinterest  Like us on Facebook  Follow us on Twitter

 

Safe Eggs
Log Out | Topics | Edit Profile
Forum Archive
 

Herbs and Lung transplant- my experience Log Out | Topics | Register | Edit Profile

TransplantBuddies.org Forums » Heart - Lung(s) » Herbs and Lung transplant- my experience « Previous Next »
Author Message
Hostess Risé
Board Administrator
Username: Rise

Post Number: 18419
Registered: 05-2003


Posted on Thursday, June 21, 2018 - 02:01 pm:   Edit Post Delete Post Print Post

October 2017, I started a regimen of Herbal remedies to treat Cystic Fibrosis - correcting and potentiating CFTR. I felt that if I could correct the defective gene that causes CF then my diagnosis of Chronic Rejection would either keep me stable or improve my health.
Before starting my daily intake of TauriNac and Indrepta (herbs and amino acids) I tried to treat the Chronic Rejection with Solumedrol treatments. Looking back, I wish I only tried one treatment. I went through higher viral loads of Epstein Barr Virus and then developed Asperglilious because of the Steroids (currently I am steroid free -my choice).
Prior to my diagnosis of C.R. I was taking a low dose of Tumeric as compared to today. I was also taking NAC which is also part of the amino acids that I take today. Looking back, prior to getting a bad cold (virus) I was not eating that healthy as I normally do and stopped taking Tumeric and NAC.
Fast forward- Since Oct 2017 when I started taking Indrepta and TauriNac, my CT scan of the Chest healed, Pulmonary Function tests remain stable, my oxygen saturation is now at 98-99 during workouts for 25 minutes, my A1-C dropped from 6.2 down to 4.8, I no longer have EBV and Aspergillus and my last sputum test revealed negative to Psuedomonas which I battled since the age of seven years old. I am going to repeat this test to make sure. My appetite has increased, my muscle tone looks much better and overall, I sleep well.
I will continue to stay on Indrepta and TauriNac and a few other herbs that I am recently taking. I would have never imagined that I would even talk about herbs. Now that I am reading more about transplant and herbs there are other patients trying them for their conditions.
Bottom line, I felt desperate to do something. This is my second transplant and I want it to last as long as possible. I know how difficult it was with my first transplant and looking back, I see how medical science has changed.
Indrepta and TauriNac are gaining popularity with COPD patients as well.
https://planetarybiosciences.com/home-page/

This was originally written on TransplantFriends.com on May 28th.

I will continue to praise Indrepta and TauriNac as I believe these two products have kept my lung function stable. I do recall before starting these products I experienced some shortness of breath and chest tightening. My FEV1 was a bit lower. I no longer feel short of breath even walking outside in the extremely hot weather here in Florida. There has definitely been a worthwhile difference and I sometimes think where would my health be today without these products.
CF- dx at 2yrs. 2nd double lung tx-05 JMH
My Photos on Transplant Friends

Facebook-TransplantBuddiesfriends


Contact: transplantbuddies@gmail.com

Add Your Message Here
Post:
Bold text Italics Underline Create a hyperlink Insert a clipart image

Username: Posting Information:
This is a private posting area. Only registered users and moderators may post messages here.
Password:
Options: Automatically activate URLs in message
Action:
Topics | Last Day | Last Week | Tree View | User List | Help/Instructions | Program Credits Administration
 
Contact Us
Established 2000 © TransplantBuddies.org