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LindyB
Member
Username: Lindyb
Post Number: 127
Registered: 07-2009
| | Posted on Tuesday, September 13, 2011 - 11:26 am: | 
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Hey All,
Bill is having some major issues with his kidneys now and the kidney Dr thinks it is from the Prograf usage. Anyone else have this problem? Bill had issues with his kidneys before the transplant but it's gotten pretty bad since then. His kidney's are functioning at about 30%. I'm hoping he will be taken off of the prograf and maybe given something else. He already takes the Myfortic but I know there are other drugs he should be able to take.
Wife and caregiver to BillyB.
Diagnosed w/Hep C and Cirrhosis 1/08
Added to the waiting list 8/08.
Transplanted 3/6/10
MD University Hospital, Baltimore
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BOBBY
Member
Username: Trackman
Post Number: 35
Registered: 06-2010
| | Posted on Tuesday, September 13, 2011 - 11:54 am: |
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LindyB: Yes my kidneys tests are going downhill and they sent me to a kidney specialist about 3 months ago. He says it's the Meds I'm taking and doesn't seem to think I should be to worried about it. Besides the Prograf and other post transplant drugs I also take Fluconasol for Valley Fever that I picked up when my immune system was very weak and even though they say it does little kidney damage I did notice a big drop in EGR once I started it. I was around 49 EGR a year ago and now it is 45. I believe EGR is the same as percent of functioning. I feel fine other than maybe having to get up 3 or 4 times a night. Still every time I take a blood test and look at the EGR I worry that they will want to start some kind of Kidney treatment and I'm all treatmented out.
on the list. Mar, 2010. Liver cancer
Phoenix Mayo Hospital
Liver Transplant July 26, 2010 |
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Mohan
Forum Leader
Username: Mraghavan
Post Number: 200
Registered: 12-2009
| | Posted on Tuesday, September 13, 2011 - 12:34 pm: |
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I am currently taking Prograf and Myfortic, but have been put on 5 mg of Lisinopril to protect my kidneys. So far, so good.
Mohan
Liver Transplant 04/18/2009
University of Colorado Hospital
"...seek a sense of the miraculous in everyday life... |
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LindyB
Member
Username: Lindyb
Post Number: 128
Registered: 07-2009
| | Posted on Friday, September 16, 2011 - 09:26 am: |
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His Kidney Dr prescribed Sensipar which is supposed to help decrease the amount of calcium that is leaching from his bones into his bloodstream. I don't know that it will help his kidney disfunction at all though.
I looked up the drug Lisinopril and see that it is used to treat high blood pressure and is also used to protect the kidneys in diabetic patients.
Thank you for your feedback. Praying that the Sensipar helps matters and doesn't contribute to the problems.
Wife and caregiver to BillyB.
Diagnosed w/Hep C and Cirrhosis 1/08
Added to the waiting list 8/08.
Transplanted 3/6/10
MD University Hospital, Baltimore
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Mohan
Forum Leader
Username: Mraghavan
Post Number: 202
Registered: 12-2009
| | Posted on Friday, September 16, 2011 - 12:08 pm: |
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Yes. Lisinopril is more commonly used to protect the kidneys of post-transplant patients having sugar issues. Sugar levels are hard to maintain with Prograf, so this was the reasons that my doctors had prescribed this.
Hope the Sensipar helps.
Mohan
Liver Transplant 04/18/2009
University of Colorado Hospital
"...seek a sense of the miraculous in everyday life... |
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mrmajestyk
Member
Username: Mrmajestyk
Post Number: 49
Registered: 11-2010
| | Posted on Monday, September 19, 2011 - 10:54 am: |
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I have had elevated Creatine levels about 3 to 4 months before my transplant, and the Kidney Docs think the high levels were due to taking lasix for at least 4 to 5 years to keep my ankles from swelling with fluid. I am on 3 mg of Prograf 2 times daily, and my Creatine level stays around 2.1 to 2.4, I was told not to get concerned about it, but I try hard to stay on top of everything now. My dad was on dialysis for 2 years before he passed away, and I know how difficult that was for him.
| Hope is the feeling you have that the feeling you have isn’t permanent. -Jean Kerr |
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Hilary
Member
Username: Cowgirlhilary301
Post Number: 57
Registered: 05-2009
| | Posted on Thursday, September 22, 2011 - 04:05 pm: |
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My kidney function is starting to decline also after 15 years of prograf. I have been seeing a kidney doctor for about a year and a half, and he says it is something that happens with prograf. I also take Lisinopril to protect my kidneys and also keep my BP low (the primary way my kidney damage is showing itself is in high bp.)
My nephrologist said that the things that can be done to try and protect kidneys are:
Lisinopril
Drink plenty of water
Limit salt intake
Avoid medications like Advil
Keep blood sugar from getting too high
Keep cholesterol from getting high
Keep BP where it should be (which the lisinopril is doing)
Keep prograf level as low as it can be to still do its job
And then hope for the best!
I take Myfortic and Prednisone in addition to prograf (and therefore can take a lower dose of prograf). My transplant team does not want to switch me off prograf until or unless my kidneys get a lot worse than they are now, as they say some of the otgher meds do not work as well as prograf to prevent rejection.
~Hilary~
2-time liver recipient 07.20.1996 and 03.01.2001 Dallas, TX
Transplant Games Athlete, Tennis/Swimming
Team Maryland |
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LindyB
Member
Username: Lindyb
Post Number: 129
Registered: 07-2009
| | Posted on Friday, September 23, 2011 - 05:45 am: |
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Thank you for your input. My husband has now also been put on Lisinipril. I hope that helps!
Wife and caregiver to BillyB.
Diagnosed w/Hep C and Cirrhosis 1/08
Added to the waiting list 8/08.
Transplanted 3/6/10
MD University Hospital, Baltimore
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Mohan
Forum Leader
Username: Mraghavan
Post Number: 204
Registered: 12-2009
| | Posted on Friday, September 23, 2011 - 10:48 am: |
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I have been on Lisinipril for nearly a year, and it has helped. I pray that it will help your husband
Mohan
Liver Transplant 04/18/2009
University of Colorado Hospital
"...seek a sense of the miraculous in everyday life... |
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