| Author |
Message |
AC
Member
Username: Asunlesssea
Post Number: 1
Registered: 02-2012
| | Posted on Monday, February 27, 2012 - 10:20 am: | 
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Hiya, I'm 32 and had a liver transplant about a year and a half again due to Autoimmune Hepatitis. I was diagnosed with it when I was 24. After my transplant, I lost about 50 lbs. Suddenly it stopped, and ever since then, I have been gaining weight till now I have gained it all back, plus ten lbs more! It seems to keep going up and there's no stopping it....I mean literally sometimes 8 to 10 lbs overnight! I eat extraordinary healthy because of this, and also exercise as much as I can, but no matter what, it keeps going up. I recently got admitted to the hospital and was taken off prednisone....I was also tested for Cushings disease. My liver numbers are good and my kidneys check out. My drs are not taking this very seriously at all, and are telling me to do the things I am already doing (exercise, low sodium, blah, etc.) and I constantly tell them ``I DO``. Has this been happening or has happened to anyone else? Is it ever gonna end? By this rate, I'm gonna be 300 lbs by the time I'm 33. So frustrating, and I also love how everyone has to point it out, like its a compliment or something. Some people have no tact. |
papillonbleu
Forum Leader
Username: Papillonbleu
Post Number: 2160
Registered: 10-2007
| | Posted on Tuesday, February 28, 2012 - 08:37 am: |
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Dear AC,
I am afraid I have had the opposite problem, difficulty in gaining weight. I would gladly take some of the weight you did not want if I could. I hope that you and your doctors can work out something that will help you to obtain the weight that is healthiest for you. I wish I had more advice, but I will be sure to keep you in my thoughts and prayers. Many hugs.
Bobbiejo
Forum Leader-Multivisceral
dx: GERD 1995, gastroparesis 2002, pseudo-obstruction of the bowel 2004
multivisceral transplant, 6 organs, 10/06/05
University of Miami/Jackson Memorial Hospital
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NewMan
Member
Username: Reganreed
Post Number: 6
Registered: 01-2012
| | Posted on Tuesday, February 28, 2012 - 08:58 am: |
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I am the same way. I lost about 75-80 pounds until I got transplanted and finally got to 150 pounds (from 130 down from about 215-220). I was eating everything, including boxes of candy bars from Costco and I still couldn't get past 150. Then the holdays came and BAM....Now I'm at 195 and it seems like I can't stop....I joke about becoming fat albert again, but dang!! I have stopped the candy bars and try to eat healthy 80% of the time I guess I need to step it up!
Liver tx - 3/14/11
The Liver Institute - Methodist Dallas |
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Stephanie
Member
Username: Casmr36
Post Number: 22
Registered: 04-2011
| | Posted on Tuesday, February 28, 2012 - 09:40 am: |
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AC, my husband is only 4 months post transplant (his transplant was also needed for Auto Immune Hepatitis) but he has been steadily gaining weight ever since he got his appetite back. I cook him healthy meals and we rarely eat out and he doesn't snack often. |
ono
Member
Username: Ono
Post Number: 151
Registered: 06-2009
| | Posted on Tuesday, February 28, 2012 - 01:20 pm: |
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I don't know if this helps or not but some people have weight gain problems after losing their gall bladders.
I take fish oil to help balance out not having one.
You could do some research into the effects of gall bladder removal. |
Mohan
Forum Leader
Username: Mraghavan
Post Number: 233
Registered: 12-2009
| | Posted on Thursday, March 01, 2012 - 11:35 pm: |
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Yes, this is a common problem. For a year, I didn't put on a pound, and then suddenly. My rapid weight gain was found to be due to sugar issues. You may wish to have your A1C checked.
Mohan
Liver Transplant 04/18/2009
University of Colorado Hospital
"...seek a sense of the miraculous in everyday life... |
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Abbe
Member
Username: Asunlesssea
Post Number: 17
Registered: 02-2012
| | Posted on Saturday, March 03, 2012 - 05:14 am: |
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Thanks to all of u for ur responses. I'm so happy its not only happening to me. And Mohan, please pardon my stupidity, but what are those levels?
Diagnosed with Auto-Immune Hep: Age 24
Transplanted: Age 30
July 8, 2010
God bless my liver donor
创Look for the ridiculous in everything and you will find it创 |
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health journey
Member
Username: Health_journey
Post Number: 53
Registered: 04-2011
| | Posted on Monday, March 05, 2012 - 11:33 pm: |
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OMG. I am so happy you brought this up. I too cannot lose weight despite dieting and exercise which I keep increasing to no avail. I was a good weight most of my life, then gained when my illness started years ago. Prior to that, I did not have weight issues.. Since my surgery, I have worked so hard to take it off and it is impossible.
I tried the ZONE diet . I Read one of the books written by Barry Sears Phd. who designed the diet based on tremendous research. "the inflammation zone" is the book I read... He has a real griip on anatomy and he describes what causes weight and health issues. My doctor recommended it saying "I can't guarantee you'll lose weight but you will get healthy". He was right. My health is better than its been in a long time. Dr Sears describes weight gain as a major imbalance in the body mostly with hormones, insulin. the diet is supposed to put you back in balance.
I increased my exercise to walking in the park and 3 Zumba classes a week. My stamina has improved dramatically.
I take prograf which messes with your insulin levels so you can become diabetic. I had to take insulin when I was on high does of prograf. Since that was decreased, I no longer take insulin. I take a mild pill and am decreasing that as my insulin is returning to normal. Having insullin issues does not help weight loss.
I keep trying and think my balance will shift back one day if I keep up with this and the weight will come off. I figure if I could get through liver failure, then a transplant, I could do anything....
Does anyone know if weight gain is a side effect of any of the drugs.
Liver Transplant 10/25/2009
UMDNJ |
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health journey
Member
Username: Health_journey
Post Number: 54
Registered: 04-2011
| | Posted on Monday, March 05, 2012 - 11:35 pm: |
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OMG. I am so happy you brought this up. I too cannot lose weight despite dieting and exercise which I keep increasing to no avail. I was a good weight most of my life, then gained when my illness started years ago. Prior to that, I did not have weight issues.. Since my surgery, I have worked so hard to take it off and it is impossible.
I tried the ZONE diet . I Read one of the books written by Barry Sears Phd. who designed the diet based on tremendous research. "the inflammation zone" is the book I read... He has a real griip on anatomy and he describes what causes weight and health issues. My doctor recommended it saying "I can't guarantee you'll lose weight but you will get healthy". He was right. My health is better than its been in a long time. Dr Sears describes weight gain as a major imbalance in the body mostly with hormones, insulin. the diet is supposed to put you back in balance.
I increased my exercise to walking in the park and 3 Zumba classes a week. My stamina has improved dramatically.
I take prograf which messes with your insulin levels so you can become diabetic. I had to take insulin when I was on high does of prograf. Since that was decreased, I no longer take insulin. I take a mild pill and am decreasing that as my insulin is returning to normal. Having insullin issues does not help weight loss.
I keep trying and think my balance will shift back one day if I keep up with this and the weight will come off. I figure if I could get through liver failure, then a transplant, I could do anything....
Does anyone know if weight gain is a side effect of any of the drugs.
Liver Transplant 10/25/2009
UMDNJ |
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Abbe
Member
Username: Asunlesssea
Post Number: 19
Registered: 02-2012
| | Posted on Saturday, March 10, 2012 - 07:46 am: |
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Is it ever gonna stop though?? And what are A1C evels? I should kno this crap, I kno.
Diagnosed with Auto-Immune Hep: Age 24
Transplanted: Age 30
July 8, 2010
God bless my liver donor
创Look for the ridiculous in everything and you will find it创 |
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health journey
Member
Username: Health_journey
Post Number: 56
Registered: 04-2011
| | Posted on Saturday, March 10, 2012 - 01:37 pm: |
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A1C levels pertain to your sugar/insulin. A glucose test measures your sugar on the day of the lab test. A1C measures sugar levels for a longer period of time. It's a simple blood test added on to your liver tests.
Mine is taken every blood test. Taking prograf raises your sugar levels. Not sure about the others. Me sugar has come way down since my prograf was decreased. I have just joined Weight Watchers to see if a structured diet scenario will help.
Liver Transplant 10/25/2009
UMDNJ |
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ono
Member
Username: Ono
Post Number: 155
Registered: 06-2009
| | Posted on Saturday, March 10, 2012 - 07:54 pm: |
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Regarding increased glucose levels, cinnamon helps to lower them. I began using cinnamon liberally until I found my glucose levels staying within the norm. |
Abbe
Member
Username: Asunlesssea
Post Number: 20
Registered: 02-2012
| | Posted on Tuesday, March 13, 2012 - 10:55 am: |
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Thanks for everyone's info. <3
But I have a question, if this is a common problem, why do my Drs pretend to not know what I am talking about and not take me seriously?
Is it because I am a lowly Medicaid insurance person that only pays them 18 cents on the dollar, so therefore, why waste their time cuz they arent making much off me?
Like a kind of "I got a liver transplant, we do ur meds, deal with it"?
Cuz thats how I kind of feel. Dont get me wrong, I'm not being a total JERK who doesnt appreciate the fact they saved my life, but its been a year and a half, and I feel like they are taking me less and less seriously.
Just as long as I have the essentials and my liver isnt goin to rejection, other problems are "my fault".
I'm sorry, not to sound horrid and incredibly unappreciative, but when my dr announced to the clinic (when I honestly think he thought I couldnt hear him) that I gained weight. I lost ALL respect. I felt like yeah u gave me a liver, but that doesnt mean u can act like God, and I have to kiss ur ••• for the rest of my life. I dont know if anyone else has doctors that are THAT arrogant, hopefully, yall will never meet mine.
Diagnosed with Auto-Immune Hep: Age 24
Transplanted: Age 30
July 8, 2010
God bless my liver donor
创Look for the ridiculous in everything and you will find it创 |
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