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TransplantBuddies.org Forums » Liver - Multivisceral » Does anyone ever feel like they were held back in life by their sickness/no support from family? « Previous Next »
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Abbe
Member
Username: Asunlesssea

Post Number: 18
Registered: 02-2012
Posted on Tuesday, March 06, 2012 - 10:20 am:   Edit Post Delete Post Print Post

Like I stated, I'm 32. I worked hard before my transplant before I couldnt work anymore at all, now that I had my transplant..and am well now for the most part, I am ready to go back to work and in the process of finding a job. I feel like I'm 16, starting all over. I had some good jobs before that woulda gotten me somewhere had I was able to stay.

Not only this, certain members of my family are very unsupportive, such as reverting back to talking to me like I'm a child because I have been made immature by this(I lived on my own till it got so bad, I had to move in with my Dad)..."Now now...Abbe...u KNOW that if u start to miss days, they will let u go, right?"
STUPID statements like that like I've never worked before in my life. Some of them think I shouldnt go back to work. Er...what am I supposed to do?
Also there was a moment back in Dec, I thought I might have been pregnant...OMG now wowwwww, when I told family member I thought I could trust, they completely treated me like I was in second grade. "Your body's not READY for that!!" (my transplant was almost two years ago and my dr said it was totally fine for me to have kids)
"OMG didnt u use something? Do u know how to use something?" WHATTT??
They cut my disability, and now I refuse to be a 32 year old having my 70 year old father (my mother died a month after my transplant) support me when I am COMPLETELY able to support myself. Yeah, there will be bumps, but doesnt everyone have them??

Does anyone else have these thoughts or similar family or anything?
Diagnosed with Auto-Immune Hep: Age 24
Transplanted: Age 30
July 8, 2010
God bless my liver donor

´´Look for the ridiculous in everything and you will find it´´
Mariel
Member
Username: Mariel

Post Number: 93
Registered: 02-2008
Posted on Tuesday, March 06, 2012 - 10:47 am:   Edit Post Delete Post Print Post

Oh Abbe sorry your family isnt supporting you as best as you need. I think you are on the right track, getting a job that will finance you for another 30 years. Hey a career could give you some good life fulfillment and additional friends/contacts whom you would never meet/enjoy. Keep at your job hunt. As far as the other dumb "noise," I've found that the key to inner peace is learning to ignore the unecessary crap. They might mean well, but you know what's best for you. Best wishes!
Mariel, wife of PSCott
www.caringbridge.org/visit/scottcarr
Mariel
Member
Username: Mariel

Post Number: 94
Registered: 02-2008
Posted on Tuesday, March 06, 2012 - 10:51 am:   Edit Post Delete Post Print Post

Oh Abbe sorry your family isnt supporting you as best as you need. I think you are on the right track, getting a job that will finance you for another 30 years. Hey a career could give you some good life fulfillment and additional friends/contacts whom you would never meet/enjoy. Keep at your job hunt. As far as the other dumb "noise," I've found that the key to inner peace is learning to ignore the unecessary crap. They might mean well, but you know what's best for you. Best wishes!
Mariel, wife of PSCott
www.caringbridge.org/visit/scottcarr
Mariel
Member
Username: Mariel

Post Number: 95
Registered: 02-2008
Posted on Tuesday, March 06, 2012 - 10:56 am:   Edit Post Delete Post Print Post

Oh Abbe sorry your family isnt supporting you as best as you need. I think you are on the right track, getting a job that will finance you for another 30 years. Hey a career could give you some good life fulfillment and additional friends/contacts whom you would never meet/enjoy. Keep at your job hunt. As far as the other dumb "noise," I've found that the key to inner peace is learning to ignore the unnecessary crap. They might mean well, but you know what's best for you. Best wishes!
Mariel, wife of PSCott
www.caringbridge.org/visit/scottcarr
Forest
Member
Username: Forest

Post Number: 10
Registered: 10-2011
Posted on Tuesday, March 06, 2012 - 11:01 am:   Edit Post Delete Post Print Post

Hi Abbe, I hope your Family members will realize you are an adult, and should be treated with dignity and respect. I am 49, and had a liver/kidney transplant 8/21/11. I am a Licensed Master electrician, and worked in the trade for 13 1/2 yrs before my transplant. I am doing quite well now, 6 months post Transplant. I am hoping to return to the construction trade as before, but I know it is very physically demanding and can be dirty, cold, hot, and wet at times. Not an easy job, fore sure, but the pay is good, when you do work. I think we all should be productive, if we physically/emotionally can handle it. Transplantation certainly changes us, and those around us, and we will never be the same person we were before. That change should not prevent us from excelling in what ever we chose to do, post transplant. Best Wishes to you, and ENJOY your NEW LIFE!
Forest

U/C, 1993, PSC, 2000
Liver/Kidney transplant 8/21/11
St. Louis University Hospital
Mariel
Member
Username: Mariel

Post Number: 96
Registered: 02-2008
Posted on Tuesday, March 06, 2012 - 11:01 am:   Edit Post Delete Post Print Post

Oh Abbe sorry your family isn't supporting you as best as you need. I think you are on the right track, getting a job that will finance you for another 30 years. Hey a career could give you some good life fulfillment and additional friends/contacts whom you would never meet/enjoy. Keep at your job hunt. As far as the other dumb "noise," I've found that the key to inner peace is learning to ignore the unnecessary crap. They might mean well, but you know what's best for you. Best wishes!
Mariel, wife of PSCott
www.caringbridge.org/visit/scottcarr

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