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Billy
Member Username: Bronxbilly
Post Number: 18 Registered: 04-2008
| Posted on Monday, February 03, 2014 - 04:07 pm: |
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This is my second Tx, first in 2007, which I lost due to donor specific antigens, and now I am coming out of an acute antibody rejection on this one. It has been hell personally. I don't tell my donors for fear of not being grateful, but part of this routing in myfortic (cellcept first time) 720 mG twice a day, 1440 in all. My trips to the bathroom are explosive to say the least,, three or four times each day. On the other hand, my cretinine in down to .6 and all else looks good. I am trying yogurt as an antidote to the diarrhea, but not much success yet. Does anyone have any suggestipns?
Billy Kidney recipient from my brother Tx 7/5/07 |
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Deniz
Member Username: Deniz
Post Number: 4 Registered: 01-2014
| Posted on Tuesday, February 04, 2014 - 08:18 am: |
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I wouldn't know what causing it, but may I suggest that you increase your water intake to compensate for the extra fluid loss ... That's what I am told every time I have gastric issues. They go away though ...
All good things come to those who wait and don't die in the meantime - Mark Twain |
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papillonbleu
Forum Leader Username: Papillonbleu
Post Number: 2311 Registered: 10-2007
| Posted on Tuesday, February 04, 2014 - 07:38 pm: |
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I had a period post transplant when I had chronic diarrhea. Knowing that there are two types of fiber helped me. Insoluble fiber like that in raisin bran cereal (just for an example) can possibly lead to diarrhea. However, soluble fiber like that found in pectin that is in apples or oatmeal can be good for someone experiencing diarrhea. I tried getting extra by using the supplement Benefiber which is a powder that has about 3 grams of soluble fiber per serving. If eating the apple, I would suggest without the peel as that can sometimes be harsh on the digestive tract (at least it is to mine). I also tried to avoid having large volumes of fluid with solids as the fluids seemed to help push the solids through too quickly. I was tried on several different medications for it. I did not really notice a difference until I tried Sandostatin, a monthly injection. I must have healed inside as it eventually became too strong and my problems with diarrhea improved. I still have to be careful to watch what I eat though. My mother always suggest the BRAT diet when it comes to diarrhea, that is bananas, rice, applesauce, and toast as these seem to settle her system. I just offer this as some foods you might try to see if you tolerate them better. I hope that you are able to find something that helps as I know how draining and possibly embarrassing having diarrhea can be. Best of wishes.
Bobbiejo Forum Leader-Multivisceral dx: GERD 1995, gastroparesis 2002, pseudo-obstruction of the bowel 2004 multivisceral transplant, 6 organs, 10/06/05 University of Miami/Jackson Memorial Hospital
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Rob C
Member Username: Rob_c
Post Number: 288 Registered: 09-2007
| Posted on Monday, March 03, 2014 - 01:49 pm: |
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I had the same problem. It won't get better until they switch you Immuran. Some people just can't take Cellcept/ Myfortic. |
alfy
Member Username: Alfy
Post Number: 15 Registered: 03-2012
| Posted on Friday, April 04, 2014 - 05:24 pm: |
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I can totally relate to your story. I found relief after making three changes to my diet. I avoid Canola oil -- a tall order if you like eating out or consume a lot of processed food. I avoid ingesting large amounts of fat within two hours of taking Cellcept; and I take a supplement called Gas-X produced by Schiff. Best of Luck! |
Dawn C
Member Username: Dcredo
Post Number: 1 Registered: 04-2014
| Posted on Monday, April 21, 2014 - 09:16 am: |
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I agree completely with Rob C, out son developed GI issues initially that went full blown after 2 years of Cellcept/Myfortic. Our neph refused to change him back to Imuran. We sought help from a GI doc that diagnosed him with a form of colitis related to his immune system end result it was the cellcept/myfortic. After prednisone dosing and finally switching him to Imuran he went into remission and hasn't had a problem since. good luck to you |